Lea Kilenga Bey, an advocate living with #SCD in #Kenya shares challenges that she & those in her community are facing. “I have to show up for those who can’t join this convo. How might we be able to restructure #healthsystems to have an equitable point of view” for the poorest

Global NCDI Poverty Network commissioner, Julie Makani moderates this excellent discussion on #SCD and #COVID19. “How can we, as scientists and healthcare providers, learn about COVID and it’s affect on #SCD, both directly and indirectly due to challenges accessing care?”

We now have a critical mass of #COVID19 survivors. All we need to do is empower them to take the lead in fighting stigma and passing public health messages #covid19kenya nation.co.ke/oped/opinion/S…

👏 We join voices with World Obesity on the inclusion of #NCDs in a draft resolution on #COVID19 - #WHA73 “It is vital that short- & long-term policy responses to #COVID19 ensure necessary access to healthcare for people living with obesity & build on the NCD “Best Buys”.”

🩺 Are you a GP or nurse in a community clinic? 💊 Are you a community health worker involved in early detection & disease screening? If so the #NCDAcademy provides frontline health workers with digital & online education on #NCD care now! 💻 👉ncdalliance.org/ncd-academy 👈

The government should provide mechanisms for health providers to conduct remote consultations for stable patients living with non-communicable diseases to minimize hospital visits that may increase their risk of contracting #COVID19KE #TuongeeNCDs #PLWNCDs #NCDs

Promote public awareness of the importance and need to strengthen one’s immune system, as the first line of defense, by increasing access to safe and healthy nutritious diets to ensure robust immune systems #Covid19KE #PLWNCDs #TuongeeNCDs

Ensure people living with non-communicable diseases (#PLWNCDs) who test positive for #COVID19 are triaged appropriately to identify any other medical conditions that increase their risk of severe infection and death #TuongeeNCDs

The government should ensure that the personnel enforcing the containment are sensitized about the identification of people living with #NCDs who need to travel in and out of the containment zone and how to facilitate their movement #TuongeeNCDs #PLWNCDs

#CHVs should be deployed during this time to trace and follow up patients/ households with people living with #NCDs to reduce social isolation and distribute essential medicines #TuongeeNCDs #PLWNCDs

#CHVs should be trained to gauge severity of #NCD cases so that these cases are sent for emergency treatment or prioritized for clinic scheduling #TuongeeNCDs #PLWNCDs

How can we build a more inclusive #UHC agenda? At the #NCDIPoverty virtual event, hear @IAMQueenLEA of Africa Sickle Cell Organisation speak on her experience living with #sicklecell in rural Kenya & why we need a patient-centered approach to #NCDs. Join us on Sept 15: bit.ly/2YFr3pw

The #COVID19 pandemic has revealed the vulnerability of #PLWNCDs. There is a great need to prioritize #NCDs in the health system through people-centered interventions. #TuongeeNCDs NCD Alliance Ministry of Health WHO Kenya Africa Sickle Cell Organisation

👏Team photo from the first Our Views, Our Voices Africa Regional Meeting 📸🌍 What did we learn? 👉People living with #NCDs must be at decision-making tables! 💡Don’t work in silo 👉#civilsociety, #govts #NCDvoices must work together! We are stronger together! #ActOnNCDs

Thank you University of Global Health Equity for making this happen! #SickleCell prioritization in #globalhealth continues to lag. Global health leaders at UGHE tell us why we need #globalhealthequity in its response and what to do to achieve this NCDI Poverty Network Partners In Health NCD Synergies youtube.com/watch?v=rWHCGV…

I am looking to partner with a different kind of funder/donor to support Africa Sickle Cell Organisation work. A partner who is willing to provide flexible unrestricted funding that allows us to ensure people living with Sickle Cell in Kenya have a chance in reaching their full potential.

We need to make it more flexible to access funding and let’s move away from the lottery mindset. We want long term partners who will be with us till the end to bring about lasting change. - @IAMQueenLEA #APF2022

Check out the new inspiring BBC News Africa story on #SickleCell, featuring our founder Lea Kilenga Bey 13

Another Sickle Cell Warrior lost to the disease. She was a Healthcare worker (Health Records at Bungoma County Referral Hospital) SCD Champion and founder of Sickle Cell Anemia Family (SCAFA) patient group. Died at the same hospital she worked at on the 29th of January 2024.