#poem #poetry #depression #suicide

With the summer holidays now underway, check out our leaflet “Leisure Activities for Children and Young People with SMA” which lists some of the many organisations that enable people with disabilities, including SMA, to participate in leisure activities: bit.ly/29ntJf3

A huge #thankyou to Alison Daniels who raised £606 by taking part in a 5k Color Obstacle Rush and giving up all sweet things for Lent this year! The money was raised in memory of her cousin, Katie Green – thank you so much Alison! #charitytuesday #tuesdaythoughts

Combining work and family life is a complex juggling act for all parents. But for parents of disabled children, the challenges are greater still. New report from Working Families and @AskUnum shows just how #OffBalance it is: bit.ly/2JHVdON

Committed Giving is vital in securing our future and ensuring that we can continue to #support individuals and families affected by #SMA. If you would like to find out about making a regular donation, please visit: bit.ly/1IqpBrC

Roche have released a community #update with details of the risdiplam programme. The update also includes an acknowledgement of the disappointment that UK SUNFISH trial sites were not initiated in time to allow UK patients to take part: bit.ly/2v22Hqr

Thank you to Karriann Johnson who took on the #Yorkshire3Peaks at the height of the heatwave and raised £176! Karriann wanted to raise awareness and funds as her daughter has SMA Type 3. If you are interested in doing a trek for SMA, take a look at: bit.ly/2tYImEi

Everest Base Camp is a #onceinalifetime trip and Classic Challenge are offering £50 off registration for the March 2020 trek! You have until 21st August to register with code EBC20. If you would like to take this on and fundraise for SMA, visit: bit.ly/2mDB9DO

Espérons que la drogue d'Avexis guérit plutôt que de mettre des bandages comme Spinraza @AveXisInc

"You look FINE." --> It takes so much effort to APPEAR that way! Meet people who understand. ⬇️ MyEczemaTeam.com/?utm_campaign=…

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