World Without GNE Myopathy (WWGM)
@wwgnem
We live in a world with #GNEMyopathy, but are making way to become a #WorldWithoutGNEMyopathy.
Support our cause : https://t.co/eYQ4p1YA02
30-03-2018 19:17:12
516 Tweets
175 Followers
94 Following
𧬠#FebRAREuary π£
#AbbeyMeyers : A Trailblazer in #RareDiseaseAdvocacy
Abbey Meyers became a pioneering force in rare disease advocacy during the 1970s when her son was diagnosed with Tourette syndrome..
Read more at gne-myopathy.org/feb-rare-uary-β¦
#RareDiseaseAdvocate #GNEMyopathy