We still know precious little about PEM, but one thing's for certain--it represents an impaired recovery response to exertion. How do we know this? We had data from systems to molecules, replicated across myalgic encephalomyelitis cohorts originating regardless of patho-etiology.

PEM is challenging because it forces us to think differently in all ways about how the body responds to exertion. Normal training rules in exercise and rehabilitation do not apply. Less is more--and when you think you're doing less then you're probably still doing too much.

And when you think a patient is ready to 'build up,' remember that does not happen (or does not happen reliably enough to be trusted) in PEM. Any approach to exercise should be undertaken only after a long runway of pacing to understand a person's individual PEM characteristics,

This looks like one paper to bookmark. Thank you Recovery in the Bin Supporting Healthcare Heroes UK Long COVID Physio WorkingAndNotWorkingWithLongCovid Sam Disabled Man Welfare Not Warfare #BackZack Dr Alison Twycross RN crr PenScribbler @OT_Skiff/Helen Irene OTs&CarersUnite BAMEOTUK

The deadline for the Canadian Respirator Standard is fast approaching. If you'd like to make a submission, here's an excellent resource: 🧵1/2 donoharmbc.ca/national-stand…

Why Medical School Trains Doctors Not to Believe Long COVID Before you judge your doctor, scroll to the end of this post and look at the picture of new medical students. Then read the article. These are the people we need to understand, that all medical students started out

🛑 Help us contact every MP in the UK 🛑 📄 Visit 👉 shh-uk.org/get-in-touch-w… 📬 Use our simple tool to contact your MP and make your voice heard. #safeair4all #longcovid #workplacesafety #infectioncontrol #PublicHealth #Healthcareleadership

As children and teachers go back to school, college, Uni.... The gross negligence of Govt, Public and Occupational health authorities to prevent airborne infection and protect workers and public from preventable virus is grotesque and criminal.

Today’s unpopular opinion is that failing to recognize post Covid ME disarticulates PEM from the existing patient experience and research evidence base, which is leading to covering the same ground and making the same mistakes of the 20 years prior to the emergence of SARS-CoV-2.

My new research is out "A Case Definition of a New Disease: A Review of the US Working Definition (USG) and 2024 NASEM Definition for Long COVID" I use two US #LongCovid case definitions as case studies for a broader discussion of SARS-CoV-2 sequelae mdpi.com/2673-8112/5/8/…

YOU. DO. NOT. WANT. TO. KEEP. GETTING. COVID.

AirFanta is going to release the wearable air purifier in September in China. It is an air purifier that directly blow clean air to your mouth and nose at very short distance. It is very flexible. You can place it in the front, under, on the side or any place you are

Hey COVID Conscious friends, This account is shadowbanned. Would y’all mind commenting with your preferred type of respi mask to help lift it? Thanks! I’ll start: FloMask! 😷✨

NO, NO New Scientist !! ""In conclusion, ....., our data indicate that COVID-19 infection is associated with mid-term and long-term accelerated vascular ageing, ESPECIALLY in women."

#DisabilityBenefits The white paper will be published fairly shortly. It’s important that we read it carefully and plan our campaign strategy going forwards. These cuts will have a huge impact on disabled people’s lives and will ramp up poverty and sadly cost lives

Todays shirt covidsafety.printify.me

Big step for safer hospitals: the new CSA respirator standard would ensure everyone—staff, patients, even visitors—has access to protection. It ties together design, cleaning, and ventilation to cut airborne risks. The CSA is accepting public comments until tomorrow, August 19.

Content warning: Improvement/partial recovery. Almost 4yrs since the day I got that awful Covid infection and I’ve improved from severe to mild(ish). I’m so excited. Next month I’m returning to uni to finish my degree on a part-time basis #LongCovidDiaries 1/🧵

I’ll be doing roughly 30% of what full time students do. With a ton of reasonable adjustments. And no placements this year. I welcome advice on coping at uni, and any extra reasonable adjustments you think will help. Wish me luck. /end

Sarah Pippa Stacy has written a book " University and Chronic Illness: A Survival Guide " ttps://www.lifeofpippa.co.uk/product/university-and-chronic-illness-a-survival-guide-by-pippa-stacey/ Not sure if she is on here to tag. I think there's a resource on ME Association too