wolfhirschhorn.org
@wolf_hirschhorn
Bringing awareness to a very rare syndrome called Wolf-Hirschhorn. Our kids are special, unique and full of life! The real story about WHS can be found here.
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http://www.wolfhirschhorn.org 19-03-2010 17:19:00
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Hoy #DiaInternacionalSíndromeWolfHirschhorn #WolfHirschhornSyndrome #WHS En Wolf-Hirschhorn y Fundación Síndrome Wolf Hirschhorn o 4p- luchan por la #Investigación, la #EducaciónInclusiva, las terapias, … #PorSuSonrisa 💚 #PasalaPalabraSWH #WolfHirschhorn #4pmenos Y conoce más el #SWH👇 wolfhirschhorn.com/sitioweb/
Hoy 16 de abril es el Día Internacional del Síndrome de Wolf-Hirschhorn Manifiesto de las familias de Fundación Síndrome Wolf Hirschhorn o 4p- para concienciar y visibilizar esta enfermedad #YoSoy4p- #WolfHirschhorn #díainternacionalsíndromewolfhirschhorn #EnfermedadesRaras youtu.be/pA-RNCczxGw
Sending love to the WHS community on #WolfHirschhorn Syndrome Day. We wear jeans today to celebrate rare genes 💙 Thrilled to also share the cover of my debut book, DANCING WITH DADDY! Elsie, the main character, has WHS. Here's more: anitraroweschulte.com/blog/whsdaydan… wolfhirschhorn.org
justgiving.com/fundraising/an… #wolfhirschhorn I’ll be running the Bracknell half marathon in memory of my brother, Rhys, who passed away in November 2019 at age 11. Please give where you can wolfhirschhorn.org
Wonderful PICTUREBOOKING PODCAST with Nick Patton and Anitra Rowe Schulte :D picturebooking.com/anitra-rowe-sc… Anitra Rowe Schulte #wolfhirschhorn #kidlitchat #kidlitart
