Tamsyn @ 💖💀VelvetVolcano💀💖
@velvetvolcano
Colourful custom creations for those 'allergic' to the norm. Chronically ill business owner living with rare disease(s) She/Her #MCAS #Erythromelalgia 🏳️🌈💜
ID: 77596944
https://www.velvetvolcano.co.uk/pages/links 26-09-2009 22:59:58
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I just wrote to the CEO of Vertex Pharmaceuticals urging her to stop denying access to lifesaving #cysticfibrosis treatment. Thousands of patients are being left to suffer & die because of Vertex's staggering $326,000 price tag! Take action here: actionnetwork.org/letters/vertex… #RightToBreathe