A year ago, at 28, I got an almost unnoticeable covid infection. Healthy, in the best shape of my life, balancing a demanding PhD with an active social life. I was taking part in everything life has to offer. Now I wonder if I will ever be active again #LongCovidAwarenessDay

This is me just before #LongCovid. I was a world traveling, award winning writer and professor. I spent my days writing, having fun with friends, and being an active mom. Now, 3 years later, I can barely walk a 1/4 mile and have to lay down after I shower. #LongCovidAwarenessDay

Please take this, this is to gather meaningful initial information in a very understudied area of #LongCovid research!

COVID reinfections are common but little is known about their impact on people's health. With support from Balvi, Patient-Led Research Collaborative's reinfections team has designed a survey to address this pressing gap in public health knowledge. #LongCOVID uclcovid19.fra1.qualtrics.com/jfe/form/SV_a2… 1/

We've a new paper out (preprint-not peer reviewed yet). Using Office for National Statistics (ONS) CIS data the odds of developing #LongCovid in those>16y at 12-20 wks after 2nd compared to 1st covid infection is reduced by 28% but it still occurs in 24 people out of 1000 after 2nd inf. medrxiv.org/content/10.110…

I also look at why this problem persists--why the marginalization of long COVID and related conditions morphs into new guises but never goes away. They're mirrors on our society, and the image they reflect is deeply unflattering. 4/ theatlantic.com/health/archive…

With the FDA public meeting for #LongCovid coming up tomorrow, it's a good time to think about: what kind of drugs *could* we trial for #LongCovid? The possibilities are honestly endless! Here is a sampling (absolutely not inclusive):

Calling all postdocs! This is a great opportunity and I’ll be excited to welcome successful applicants into our center! Must be willing to live in NYC and be passionate about finding answers for folks with #LongCovid, #MECFS, #Lyme and other complex chronic illnesses!

A 10-min stand test is a cheap and easy test that should be performed on every #LongCovid patient to identify whether #Dysautonomia is present. Pictured is a Jacobs School at University at Buffalo med student who shadowed me today doing the test. I am hoping she and others become interested in

A much needed resource and one that will support #LongCovid patients in their rehabilitation but this still needs to tailored and highly personalised. Enjoyed working with such a great group behind the scenes on this one!

What an incredibly powerful art installation in recognition of the #MillionsMissing from their lives because of Myalgic Encephalomyelitis (ME). Heartbreaking, breathtaking, gut-wrenching, all at once. 💔 Kudos #MEAction Network

Unrest is now available for free, on YouTube. Watch now and share with your friends and family! youtube.com/watch?v=XOpyLT… #timeforunrest

"Q&A with Lisa McCorkell, Long COVID researcher and patient" H/T L Patient-Led Research Collaborative amsterdamnews.com/news/2023/05/2…

A review of the complex immune system dysregulation in #LongCovid elifesciences.org/articles/86014… eLife - the journal by Jalees Rehman and colleagues

Missing is one of the most common, most disabling and most undiagnosed and untreated neurologic manifestations of PASC/#LongCovid: 📢 #Dysautonomia - which is present in about 70% of patients with LongCovid. ‼️ Read our consensus guidance statement on post-Covid autonomic

MAJOR NEWS HHS Awards $45 Million in Grants to Expand Access to Care for People with #LongCOVID. Today, the U.S. Department of Health and Human Services (HHS), through the Agency for Healthcare Research and Quality (AHRQ), announced nine grant awards of $1 million each for up

COVID is surging again. I’m here to speak from my own experience: mild infections can lead to Long Covid, REST. Rest longer than you want to. Rest when it gets boring (it will). Rest when you think you’re recovered. After you’re stable for some time, ease back into life. 🧵🧵

Latest piece: Ludmila Praslova, Beth Pollack, and I wrote a guide on #LongCovid accommodation and #inclusion in Harvard Business Review latest #bigideas issue. No shock: inclusive practices that are good for chronically ill employees are good for everyone. hbr.org/2024/05/long-c…

Now, Covid/#LongCovid is among the most studied diseases in medical history. We know too well what SARS-CoV-2 is capable of. It was also clear we were walking into disaster for public health, whether Covid wasn't contained, already in 2020. Policymakers must adhere to reality