UNDERSTAND AAV (@understandaav) 's Twitter Profile
UNDERSTAND AAV

@understandaav

Taking a closer look at AAV
(ANCA-associated vasculitis).
Information is intended for HCPs.
Sponsored by Vifor Pharma

ID: 1176103778208157697

linkhttps://www.understandaav.com/ calendar_today23-09-2019 12:00:43

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UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Kidney involvement is more frequent in patients with Microscopic Polyangiitis (MPA), than those with Granuloma Polyangiitis (GPA). Find out how these frequencies change for other areas of the body at: understandaav.com/introduction-t… #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Examine the evidence and crack the clues to identify the prime suspect implicated in the pathophysiology of AAV and educate yourself along the way by trying out the interactive game, Investigate AAV! Visit: understandaav.com/interactive-to… #AAV #ANCA #vasculitis #raredisease

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C5a is a protein within the complement system that amplifies ANCA-induced inflammation and vascular damage. Learn more about its role in the pathogenesis of AAV at: understandaav.com/disease-mechan… #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

With an annual incidence rate of approximately 13–20 cases per million in Europe, AAV is classed as a rare disease. Find out how its most common subtypes vary in commonality across Europe by visiting: understandaav.com/introduction-t… #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

What do your AAV patients know about the challenges carers face? The new MASTERCLASS modules can offer them detailed insights into the carer's journey, with stories and advice from real AAV carers. Visit: aavmasterclass.myancavasculitis.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

"I was afraid of the diagnosis…I started imagining a lot of things." – Martina, MPA Your patients can hear others' insights into the psychological AAV journey by exploring the new MASTERCLASS modules at aavmasterclass.myancavasculitis.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

C5a is a protein within the complement system that amplifies ANCA-induced inflammation and vascular damage. Learn more about its role in the pathogenesis of AAV at: understandaav.com/disease-mechan… #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Whether it's fatigue sleep disturbance or anxiety AAV can affect the quality of life of your patients in a variety of ways and that's just one impact of the disease. Learn more about the wide-reaching burden of AAV at: understandaav.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

With patient-friendly language and simplified science, the Dialogue Tool helps make all things AAV understandable for your patients, meaning they can get the best outcomes from appointments. Take a look today at: understandaav.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Did you know that as a systemic disease, AAV can impact many organs, including lungs, kidneys, skin, ears and eyes? Find out about all of the ways in which AAV can impact your patients by exploring: understandaav.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Do you want to learn more about AAV in a different way? With AAV World, the interactive tool, you can explore the challenges faced by AAV patients, like organ damage and quality of life. Learn more at understandaav.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

ANCA-associated vasculitis patients often experience a long pathway to diagnosis. This is because most patients go through referrals and therefore may see several physicians before a diagnosis is made. Visit understandAAV.com to find out more #AAV #ANCA #Vasculitis

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Living with a rare disease like AAV can leave patients feeling uninformed as they manage their disease. Why not direct them to our Patient Brochure at myancavasculitis.com which contains interviews and advice from HCPs and patients. #AAV #ANCA #vasculitis #raredisease

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GPA and MPA are the most common clinical subtypes of ANCA-associated vasculitis. Learn more about the incidence and prevalence of AAV at: understandaav.com/introduction-t… #AAV #Vasculitis #RareDisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

Our current understanding of ANCA-associated vasculitis (AAV) is rapidly evolving. Visit understandaav.com to read key research papers and keep up with the latest clinical data in AAV. #AAV #ANCA #vasculitis #raredisease

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The often lengthy path to diagnosis means AAV patients may already have specific organ damage and risk of mortality by the time they've received a diagnosis and started treatment. Find out more about disease burden at understandaav.com #AAV #ANCA #vasculitis #raredisease

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Minor relapse is an under-recognised clinical problem for AAV patients when receiving remission induction therapy, leading to prolonged glucocorticoid use in the long term. Find out more at understandAAV.com #AAV #ANCA #vasculitis #raredisease

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

With advice and information covering all aspects of AAV, the HCP Dialogue Tool provides a perfect resource to help patients discuss their condition with their doctors and make the most of their appointments. See more at understandaav.com #AAV #ANCA #vasculitis #raredisease

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Hear the story of vasculitis patient and former rheumatologist Shanali, who turned to art after her diagnosis. The work of Shanali was central to the development of the patient disease awareness initiative: SEE ME. HEAR ME For more stories visit myancavasculitis.com #AAV

UNDERSTAND AAV (@understandaav) 's Twitter Profile Photo

At referral, AAV patients often have a multitude of symptoms, including renal disease, fatigue and fevers. To learn more about these symptoms and how common they are, visit understandaav.com #AAV #ANCA #vasculitis #raredisease