UK TTP Registry (@ukttpregistry) 's Twitter Profile
UK TTP Registry

@ukttpregistry

The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry based at University College London.

ID: 1278996313527500804

linkhttps://www.uclh.nhs.uk/our-services/find-service/cancer-services/blood-diseases-clinical-haematology/blood-diseases-types-and-services/red-cell-diseases/TTP/united-kingdom-thrombotic-thrombocytopenic-purpura-ttp-registry calendar_today03-07-2020 10:17:59

17 Tweet

106 Followers

107 Following

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

Research charities like British Heart Foundation play a key role in UK science & research. But due to Covid-19, catastrophic funding cuts risk the slowing of medical advances that save lives. 50+ MPs have written to Rishi Sunak raising this vital issue. theguardian.com/science/2020/j… #ResearchAtRisk

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

Management of thrombotic microangiopathy in pregnancy and postpartum: report from an international working group. ashpublications.org/blood/article-…

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

Cerebral MRI findings predict the risk of cognitive impairment in thrombotic thrombocytopenic purpura onlinelibrary.wiley.com/doi/full/10.11…

Tina Dutt (@tinaduttdr) 's Twitter Profile Photo

Thanks to all UK #TTP treaters UK TTP Registry and @BloodJournal for sharing this valuable data informing ‘real world’ use of Caplacizumab with the wider TTP Network- helping to guide best practice in rare disease

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

Identification of a novel genetic locus associated with immune mediated thrombotic thrombocytopenic purpura: haematologica.org/article/view/h…

Rare Disease UK (@rarediseaseuk) 's Twitter Profile Photo

Want to star in a #RareDiseaseDay video to help highlight the diversity of the rare community? Especially looking to hear from young adults with a rare condition from minority ethnic communities/ the LGBTQI+ community. Email [email protected] by 12 Jan.

Want to star in a #RareDiseaseDay video to help highlight the diversity of the rare community? Especially looking to hear from young adults with a rare condition from minority ethnic communities/ the LGBTQI+ community. Email rarediseaseday@geneticalliance.org.uk by 12 Jan.
UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

The use of obinutuzumab and ofatumumab in the treatment of immune thrombotic thrombocytopenic purpura onlinelibrary.wiley.com/doi/10.1111/bj…

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

Join us for a sponsored walk along the River Thames taking in some of the most iconic sites across the capital and to raise funds for TTP Education & Research and related platelet disorders. ttpnetwork.org.uk/ttp-london-bri…

UK TTP Registry (@ukttpregistry) 's Twitter Profile Photo

New paper from our Spanish colleagues: Real-world effectiveness of caplacizumab vs standard of care in immune thrombotic thrombocytopenic purpura ashpublications.org/bloodadvances/…