
TYA Cancer Research PSP
@tyapsp
A research priority setting exercise with professionals, young people, and the public. What are the unknown research questions for young people with cancer?
ID: 2742312132
http://www.jla.nihr.ac.uk/priority-setting-partnerships/teenage-and-young-adult-cancer/ 18-08-2014 15:59:41
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Interesting poster on āImpact of cancer on physical and mental activities of daily living in young adult (YA) survivorsā Selfcare interventions No.2 in Top 10 research priorities for AYA TYA Cancer Research PSP Read full report here #ASCO2019 jla.nihr.ac.uk/priority-settiā¦

The @tyapsp Top 10 research priorities donāt seem to be unique to UK. International data highlighting need for psychological interventions to support young people during and after treatment faithgibson Bob Phillips Susie Aldiss

Out today - our paper on James Lind Alliance priorities for young people's cancer. What research questions do young people, carers and professionals want answered? Top priorities: psychological support, reducing effects of treatment & trials access. Read it here bmjopen.bmj.com/content/9/8/e0ā¦



We're proud to have partnered with James Lind Alliance, CLIC Sargent and Children with Cancer UK on this brand new report which identifies where research is urgently needed to improve experiences for young people with cancer. Find out more: teenagecancertrust.org/about-us/news/ā¦

Delighted The National have covered our paper and in particular our upmost research priority of psychological support for teenage cancer patients both during & after treatment šš¼ TYA Cancer Research PSP thenational.scot/news/17817272.ā¦

Front page of Clydebank Post! Amy Callaghan from our TYA Cancer Research PSP steering group shares why our top James Lind Alliance priority - psychological support for young people during & after treatment is so important. Read it here: clydebankpost.co.uk/news/17840168.⦠Teenage Cancer Trust CLIC Sargent Children with Cancer UK

At the RCN International Nursing Research Conference today? #Research2019 Come & hear faithgibson presenting our James Lind Alliance research priority setting exercise for young people's cancer 3.55-4.20pm, Room 3001 Bob Phillips Lorna A Fern Susie Aldiss The RCN @RCNResearchSoc


Looking forward to speaking at the ChildhoodCancerConf on Friday, sharing the important issues raised in the 'out of scope' questions from our research priority setting exercise for young people's cancer James Lind Alliance TYA Cancer Research PSP @CCLG_UK Bethany's Wish

TYA James Lind out of scope questions presented by Susie Aldiss shows survivors need good communication, information and honest discussions about long term effects and fertility impact #CCC19


Great talk from Susie Aldiss about the āout of scopeā questions from TYA Cancer Research PSP - great to hear nothing from this study āwastedā but some important issues identified taken forward outside of the PSP

First day back and off to Germ Cell Tumour Conference 2019 excited to be presenting patient views on replacing CT Scans with new circulating MicroRNA blood Test TYA Cancer Research PSP No. 7 #LWBC No.1 @Michelle_Barts Shiv Smith š CRUK Cambridge Centre: Paediatric Cancer šļø #GCT19


Fabulous to hear it has been useful for you as a funder @skohlhaas we are bringing together relevant NCRI Partnership tomorrow to discuss our TYA Cancer Research PSP priorities and mobilising our TYA Top 10 Bob Phillips faithgibson Susie Aldiss Amy Callaghan

Timely that this new report on what happens after James Lind Alliance priority setting exercises is out just as we bring together funders today to discuss taking forward the TYA Cancer Research PSP priorities #MoreThanATop10 faithgibson Lorna A Fern Bob Phillips NCRI Partnership

Had an amazing day presenting our paper on teenage & young adult cancer research priorities to potential funders w/ Lorna A Fern & Demi Mcgeachy - so much enthusiasm for the research going forward. So proud of this work & hopeful of the progress that can be made in teenage cancer


representation of the @tyapsp original question bank! Bob Phillips you can read sorting and final questions jla.nihr.ac.uk/priority-setti⦠faithgibson Susie Aldiss #SIOP2019


Our next abstract is being presented by Susie Aldiss and is about analysing 'out of scope' questions identified in the James Lind Alliance TYA Research Priority Setting Partnerships in order to tell the whole story of TYA experience #TYAC2019


Out today! Report on young peoples experiences of being James Lind Alliance TYA Cancer Research PSP Steering Group members Kristina Staley Key finding: positive impact of involvement on mental health #MentalHealthAwarenessWeek With recommendations for PSPs involving young ppl bit.ly/2Xj9wBX


Anyone have a teenage & young adult research group running at the moment? Would love to hear about it if you do!! G š NUH Patient Partnership Group (PPG) š @RCNResearchSoc Julie Menzies

Great to see this Hamish Wallace . The reduction of late effects was No.2 in the Top 10 research priorities for TYA TYA Cancer Research PSP faithgibson Susie Aldiss Bob Phillips Teenage Cancer Trust #AYAcancer