THREAD: ALS Signal has been updated with some great new information! iamals.org/alssignal - The trial at the University of Alabama at Birmingham studying Yogic Breathing is now recruiting. (1/3)

Avoid the Chuck E. Cheese in Tampa, Carrollwood. The party coordinators are not helpful and the manager complains to customers who ask questions. There are many options for kids parties in Tampa. Save yourself the aggravation and explore those first! #avoidchuckecheese

It's time Congress ends the failed CDC ALS Registry and redirects the $10M to the ALS coordinating centers' natural history study. This money would help bring access to often excluded study participants. Let's end the pet project and focus on what is needed and beneficial.

We are living in the Animal Farm. We accept that all animals are created equal, but some are more equal than others and we can't tell the difference between the humans and the pigs.

This guy is 4 today. Happy birthday Mayhem!

.U.S. Rep. Kathy Castor, watch Leanne's story youtu.be/GzlSNvKOrEk, and make sure no other family needs to learn the lessons ALS teaches by cosponsoring the Promising Pathways Act (H.R.3761) #EndALS #Fight2EndALS

.Marco Rubio, watch Leanne's story youtu.be/GzlSNvKOrEk, and make sure no other family needs to learn the lessons ALS teaches by cosponsoring the Promising Pathways Act (H.R.3761) #EndALS #Fight2EndALS

.Rick Scott, watch Leanne's story youtu.be/GzlSNvKOrEk, and make sure no other family needs to learn the lessons ALS teaches by cosponsoring the Promising Pathways Act (H.R.3761) #EndALS #Fight2EndALS

On this important date in American history, I am grateful for those who stood in defense of the Capitol and the democratic process, and strongly condemn any and all who participated in the insurrection and those who incited it. I for one will not forget.

Seems easy enough...

I am not sure what makes me more upset, the idiots who buy into the false narrative around the January 6 insurrection or those who think I am stupid enough to believe their lies.

ALS takes away your abilities & at some point you require help to do the simplest things. Four months ago, I needed to hire a caregiver to be with me during the day. Unfortunately, this is not covered by insurance. Any help would be appreciated. gofund.me/477f5ca7

Just because I have ALS doesn't mean that I am exempt from life's heartbreaks. Over the holidays we learned that my 85 year old mother has two tumors which appear to be cancer. When she found out she worried about the beef stew she had wanted to cook for me. So typical.

My youngest grandson and I AM ALS have two things in common. They are both 5 years old and they both give me a sense of purpose and hope for the future. Happy 5th birthday I AM ALS!

Organizations are made up of people who believe and give it life. No one organization can do it all, but it can't do anything without the support of the community it serves. Juan, Juliet and hundreds of past and present community members have built something special over 5yrs.

Congestion, cough and fever... Pre ALS - Dayquil and tissues With ALS - Visit to urgent care in case there is a problem with my lungs, cough suppressant and decongestant. #LivingwithALS is always extra.

Managing through the post ALS diagnosis fog in the US is hard enough in English, image what it's like for Spanish speakers. Everything from clinic visits to resources, from trials to support groups is significantly scarce and limited. There is an opportunity to do better.

Today the courts did what they are supposed to do. Earlier the International Court of Justice ruled in favor of the protection of civilian population in Gaza. This afternoon a NY court ruled in favor of E. Jean Carroll ordering Trump to pay an additional $83M. A step forward.

You've done walks and runs for ALS, but have you ever done a cooking class? Italian chef Deborah Dal Fovo will teach you how to make tiramisu on February 10th (just in time for Valentine's Day), and 100% of the proceeds will go to I AM ALS! give.iamals.org/event/online-c…

Mayhem and I are enjoying Puppy Bowl XX. Go Team Fluff!