Another word for woke;

Brilliant interview today with Prof Sarah Rugheimer. All round over-achiever and MSer. We talked about disclosing your #MS to an employer. The good, the bad and the ugly. Subscribe to theMSguide.com and tick the bell to be notified when the video is live.

This is so important. I was diagnosed earlier than the lady Aaron is talking about but I too was 'left to languish'. I was never offered an MRI to look at whether my MS was progressing or DMDs between the years 1995 - 2016. Few relapses and told that I had 'benign MS'. Now SPMS.

I just experienced my first MS hug. Scared me because it, at first, felt similar to the chest pains I had with my heart attack a year ago. This article helped me understand the difference. Whew! multiplesclerosisnewstoday.com/multiple-scler….

Sharing this from my blog for #MEAwarenessDay #WorldMEDay ~ quotes from 42 people with #MECFS, on the reality of what it feels like living with this devastating disease. “A life with ME is like a non-existence. I’m alive, yet not really living” #pwME notjusttired.com/2019/05/08/wha…

If you contact an #MSNurse via email, is there a specific time frame for when they need to get back to you? I emailed as I had a specific complicated question to ask and the phone went to voicemail. I’ve never met her, but she told me that I could always email her as needed.

#MEAwareness

True confession After asking if ppl with MS often found themselves apologising/justifying their disability, I realised it was time to make some changes. So today I took out my Transport For London "Pls offer me a seat" badge which has been in my drawer for 3 yrs. Time to use it.

I’m sure this had the best intentions as an act of friendship but… it’s classic non-disabled gaze. A wheelchair is the dignified way to move when you can’t walk, not a horrible thing to escape. Being lifted out of it and carried makes most of us (not all!) wince at the thought.

MS/menopause Thrilled the Burning Debate @ECTRIMS23 will be: "All women with MS should start hormone replacement therapy at menopause unless contraindicated." With Ruth Dobson, Rhonda & Melinda Magyari Recognising 2/3 of ppl with MS are women & all will go thru menopause

I've been struggling a lot due to my #MS, so haven't been on social media much! But I wondered if any other MSers have had spasticity on one side of their neck? It has come on twice for me now, each time lasts a week or so and is painful AF :(

Happy #DisabilityPrideMonth folks. I wonder when we'll see the same ability to celebrate & have our voices heard that other groups get when they mark that they are proud to be who they are? Go us!

Expect to collect my new #motability car this week but I still need some adaptions made. I’m going to go for hand controls but I am a bit nervous about getting used to them! Any experiences? #Disability #MS

💥 My Current Blog Posts - Updated 💥 What's been happening in my world lately? Feel free to browse and explore at your own pleasure and leisure. Thanks. 🙂 → rebrand.ly/current-blog ← 🫵 What has been the most important thing for *You* this week? ❓❓

Tired? No, listen. MS sucks the life force from you, chews it up and spits it out. And then you get to watch as MS pisses all over it. Meanwhile, you can’t think straight b/c all your remaining energy is going into continuing to exist. That’s MS tired. #MS #MultipleSclerosis

Hopefully game-changing! How amazing would this be if it worked? 🤞🏻 medicalnewstoday.com/articles/inver…

"The pain is constant; yes, there are times when it might be better than other days, but there is never an off-button. Living with chronic pain, the feelings and sensations that it invokes never stops." brainlesionandme.com/what-happens-w… via Rhiann Johns

"I’m aware that I can still walk (albeit wall-walk) at home, I can still drive, and using assistive devices helps me to stay independent. But it obviously is no comparison to what my body used to be able to do." 🔗trippingthroughtreacle.com/spms-and-body-… via Jen ♿️ #ChronicIllness #MS

But I think it is important to acknowledge that I am aware that they do more than the average child; I want the children to know that I see all that they do, and that I appreciate their help so much. #youngcarers trippingthroughtreacle.com/grr-you-expect… via @trippingtreacle