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#UniteToFight2024 Eröffnungszeremonie 🇩🇪 Alle acht Reden der Eröffnungszeremonie der #UniteToFight Konferenz - von Politikern, der WHO, Patienten und Patientenorganisationen sowie einem Journalisten - sind nun mit deutschen Untertiteln verfügbar. Bitte nehmen Sie sich die Zeit,

📢 New Video! Join Alison Cohen and Gina Assaf (Gina Assaf 🍉) as they discuss the impact of extended-course #Paxlovid in #LongCOVID at #UniteToFight2024. Learn about patient-led research and its potential in advancing treatment approaches. 🎞️ Watch now: youtu.be/sUGRz02RaV8

📢 Achtung Berlin ⚠️ Fragst du dich auch, wann die versprochene Off-Label-Liste kommt? Dann demonstriere mit uns! 👇 - am 23.08 um 15:30 vor dem BMG

Two fellow Long Haulers spontaneously decided to have a protest in front of BMG & I'm all for supporting as many street protests as possible, so l decided to add an idea & put my support behind it. /1

Happy Birthday Kara Jane ❤️

Im Gespräch mit unserem Vizekanzler und Wirtschaftsminister Robert Habeck. Mehr Infos zum Gesprächsverlauf erfahrt ihr hier ⬇️ instagram.com/p/C-xFJJZMSKd/…

„Before the corona virus epidemic, it was estimated that around 2,000 people had the ME disease in Iceland. Friðbjörn says that it should have been known in advance that not everyone would recover from covid, but it is believed that the number of people with ME in Iceland has

📢 New Video! Bettina Grande (Bettina Grande) shares how psychotherapy can help maintain identity despite PEM in #MECFS and #LongCOVID. Learn how patients find self-determination and stability in her talk at #UniteToFight2024. 📽️ Watch now: youtu.be/82z1Gp134E0

Deutsches Fachpublikum! Hybride Fortbildungsveranstaltung zu #LongCovid #MECFS und #PostVac!

📢 New Video! Learn about PEM and the principles of pacing for managing #LongCovid and #MECFS from experts Clayton Powers and Amy Mooney (Amy Mooney,OT4ME) at #UniteToFight2024. Discover practical strategies to improve your quality of life. 📽️ Watch now: youtu.be/xt4lCTmV_98

Save the Date! The first Pediatric Long Covid Awareness Week is September 9-13th✨ Join us in raising awareness and supporting children affected by Long COVID. Stay tuned for exciting events, activities, and ways to get involved! #LongCOVIDAwareness #PediatricLongCOVID

Auch die Uniklinikum Essen kann sich gerne dazu äußern. Wir Betroffenen sind sehr gespannt. #LongCovid #MECFS zdf.de/comedy/zdf-mag…

📢 New Video! Prof. Dr. Georg Schomerus (Georg Schomerus) delves into the stigma of #LongCOVID and #MECFS, exploring the effects of psychologization and the need for better support and awareness. Watch his insightful talk from #UniteToFight2024 now! 📽️ youtu.be/xx8rV2YeIj8

📢 New Video! Harry Leeming, CEO and founder of Visible, discusses the use of wearable technology to manage #LongCOVID and #MECFS. Learn how HR monitors can help track symptoms and improve research in his talk at #UniteToFight2024. 📽️ Watch now: youtu.be/JdQkIZcucDQ

📢 New Video! Edo Plantinga & Dr. Joanneke van Der Nagel (Long Covid Toolkit) present the Long Covid Toolkit, a resource combining science and patient reviews to empower those with #LongCOVID. Learn more about the toolkit at #UniteToFight2024! 📽️ Watch now: youtu.be/eh_JM9uBMsc

ME/CFS is clear to see in the blood -So how did this study find so many biomarker differences? Big data: the 1,400+ patients and 130,000+ controls gave this research statistical power to find differences that wouldn't show up in smaller studies. meassociation.org.uk/2024/09/resear…

📢 New Video! Dr. Rae Duncan (Rae) discusses the role of phenotyping in guiding effective treatments for #LongCOVID at #UniteToFight2024. Learn how breaking down the condition into subtypes can help tailor treatment strategies. 📽️ youtu.be/7R9BJJsm0e4

🙏 Danke Jan Böhmermann 💩 & ZDF für die echt gut recherchierte, prägnante Darstellung der medizinischen und sozialen Katastrophe ME/CFS und Long Covid. #frauenticket #MECFS #MEAwareness #LongCovid #PostCovid  #Forschung zdf.de/comedy/zdf-mag…