
Toni A Mathieson
@toninpuk
CEO @NiemannPickUK, wife, mother of three NPC angels, friend and rare disease patient advocate
ID: 414705247
17-11-2011 11:35:30
200 Tweet
196 Takipçi
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In April the #DementiaStrikesChildrenToo campaign launched in Westminster Tube Station to raise awareness of childhood dementia, and drive for better clinical education of Niemann-Pick, Batten disease, and MPS. For more info tweet: NPUK BDFA MPS Society UK, here for those with rare diseases






Thanks to Rushanara Ali MP 💙 for highlighting the role that charities are playing in the recovery, and that additional support is needed at the Budget to make sure this work continues #RightNow

Thank you Sunderland UK for showing your support for the many families impacted by a rare disease. We are rare, we are #Many #Strong #Proud #RareDiseases #niemannpick #npc #ASMD #RareDiseaseDay2021










