Ina • me/cfs (@tink_ina) 's Twitter Profile
Ina • me/cfs

@tink_ina

#mecfs 13 years, severe. bedbound w near fatal spine injury causing a yet to be diagnosed neuromuscular condition. 🇸🇪

ID: 1631114084807483398

calendar_today02-03-2023 02:08:14

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Ina • me/cfs (@tink_ina) 's Twitter Profile Photo

Imagine this: You go in for surgery for #MyastheniaGravis. You code, nearly die, but doctors save you. It’s the worst day of your life. All you need is comfort. Your abusive parents respond by screaming at you and taking away your life-saving treatment. #NarcissisticAbuse

Rebecca Ryan (@drrebeccaryan) 's Twitter Profile Photo

Gar McGuigan Liam H Every disease is of “biological” origin, the triggers just differ. But for the treatment of MeCFS and related illnesses we r fighting and uphill battle, predominantly led by the psychiatric community that this disease is entirely in the pts head.

heather 💫 (@_heatherlynn) 's Twitter Profile Photo

feeling a very childish desperation where i just want things to be good and people to not be evil and for everything to not feel hopeless haha

Ina • me/cfs (@tink_ina) 's Twitter Profile Photo

It was never my family and me, together, against my disease. It was family against me, personally. Me being sick was a personal failure on my part, and like a direct attack on them. That’s what it’s like being sick in a dysfunctional family. No love. #chronicillness #cptsd

رِفْعَت (@rif_yaseen) 's Twitter Profile Photo

Nobody likes you when you're depressed. Plain and simple. We can talk all day about mental health and how important it is, but the moment you are depressed, people start to distance themselves. They see you as negative, a burden, and someone too heavy to handle.

Carole Bruce (@carolebruce17) 's Twitter Profile Photo

‘Simple blood test could provide first reliable diagnosis for ME’ 116 biomarkers found which could diagnose #ME ..🤞🙏 thetimes.com/article/72d962…

Ina • me/cfs (@tink_ina) 's Twitter Profile Photo

Today is midsummer and I had no idea. My window is open and I can hear multiple parties in my neighborhood. It’s not that I want to participate, I hate Swedish holidays. It’s that I’m bedbound in torture and can’t choose to not participate, and runaway #mecfs #spineinjury

cha (@charlottehvrn) 's Twitter Profile Photo

My very lovely friend Tobias put a voice on my suffering and started a new GFM campaign for me. A bit more than a month after PLEX I crashed hard (probably overdid it + my aabs have grown back fast). I need a bit of love and magic now. Please share😔❣️ gofund.me/e9083b63

Autonomic SFN (@modernainjury) 's Twitter Profile Photo

There is a lake from mild to moderate, a sea from moderate to severe, an ocean from severe to very severe, and a universe from very severe to extremely severe. #MECFS

Matt (@mgtmecfs) 's Twitter Profile Photo

ME/CFS is one of the worst things a human can experience on this planet. In terms of long term suffering and despair, it's in a league of its own. I don't know the reason human souls come to Earth, but ME/CFS destroys any potential reason for being here.

Ina • me/cfs (@tink_ina) 's Twitter Profile Photo

Sometimes I think maybe I should post on insta again but I never do because if I have to tell them what happened to me I will explode implode vomit collapse. It’s out of the question.

Sometimes I think maybe I should post on insta again but I never do because if I have to tell them what happened to me I will explode implode vomit collapse. It’s out of the question.