John has been too busy (not?) being a journalist, hanging out with Gritty, and (not?) being a furry to do a segment about ME before now... right, John? #JohnVsJonVsME

Mr Bean says, "SAVE THE BEANS!" #MitochondriaNotHypochondria #GreatestMEdicalScandal #JohnVsJonVsME 🫘 meme by @dualiejulie

Patients are often as knowledgeable or more knowledgeable than medical professionals. We advocate from bed because it’s our only hope. #JohnVsJonVsME #GreatestMEdicalScandal

@IAmJohnOliver Jon Stewart #JohnVsJonVsME #GreatestMEdicalScandal

Pacing is not a treatment for Long Covid. It’s palliative care.

#Disabled advocacy: Missing close to an hour of NIH NIAID News #RecoverTLC meeting on #LongCOVID because NIH doesn't know how to operate their shuttle wheelchair ramp. So much for accessibility at a...medical research campus meant to serve chronically ill & disabled people ♿

A few more highlights from what #MEAction's Jaime Seltzer shared to today at NIH #RECOVERTLC. "The severe presentation is very important to study." "We need inclusion of more diverse populations & we need to make an explicit effort in that direction, not just hope it happens."

Definition of Irony. Being too sick in bed this week to tune into RECOVER TLC. #RecoverTLC #NIH #LongCovid #pwME

For those that missed last week’s NIH RECOVER-TLC three-day event on #LongCOVID OR could only tune in intermittently because of cognitive exertion capacities imposed by our condition, recordings are now available online as a playlist on YouTube. youtube.com/playlist?list=…

THANK YOU to every #LongCOVID patient, caregiver & loved one, from red & blue states, for calling, emailing & meeting with Congressional leaders to share #LongCOVID research is a bipartisan priority. Today's Senate HELP hearing testimony is a result of your engagement & outreach.

Twelve years ago, Stanford Medicine geneticist Ron Davis shifted his focus to study severe chronic fatigue syndrome — the disease that has profoundly affected his son. Today, each new discovery, big or small, gives him hope for a path forward. brnw.ch/21wXGhf