Today, I’ll be meeting with my members of congress Senator Alex Padilla , Senator Laphonza Butler , and Rep. Salud Carbajal urging them to support PRV for pediatric #RareDisease , boost outdated #SSI asset limits, & kids access to care #AKAC. Join me today! mda.org/advocacy

Executive producer of the groundbreaking film #GoodBadThings, Steve Way, speaks with #MDA advocates before they head to Capitol Hill! 🎬 Steve is kicking off the day and encouraging advocates to make a positive impact. The perfect way to start our day on the Hill!

We are so proud of this incredible group of #MDA advocates! We spent today on #CapitolHill advocating for legislative priorities for the #neuromuscular disease community. You can participate in events like these and raise your voice with us at MDA.org/Advocacy #HillDay

On this day of remembrance, #MDA pays tribute to the bravery and sacrifice of the hundreds of FDNY fire fighters and International Association of Fire Fighters members lost to 9/11. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger. #NeverForget

Thank you to legislative director John Quinn for your time during our meeting and Rep. David Schweikert for allowing us to meet you. Glad we got to speak about very important topics such as supporting #PRV for rare pediatric diseases. #mdaonthehill24 #AKAC #RareDisease MDA Advocacy Muscular Dystrophy Association

All we need are four Republicans in the Senate to stand up to Donald Trump. That’s all it takes to stop his plan to gut Medicaid so he can give a tax break to rich people. Keep up the pressure.