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"The burden of disease and disability from Long COVID is on par with the burden of cancer and heart disease. The best way to prevent Long COVID is to prevent COVID in the first place. There is no Long COVID without COVID." Brilliant testimony by Ziyad Al-Aly, MD! #HELPLongCovid

📢Editor’s Choice Article in #mdpijcm: 📰 Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire 👥 by Kristian Sommerfelt et al. Trude Schei Dr Katharine Seton Read the full text👉https://whttps://brnw.ch/21wLDrT

I'm at a loss for words. We're dying at the hands of those who should be helping us, yet they face no accountability. I sometimes feel like we don’t matter in this world… #MyalgicEncephalomyelitis

Ableism kills #MECFS #MaeveInquest "'Had Maeve presented with those symptoms but with a diagnosis other than ME, I believe she would have been treated very differently'... ...A paediatrician told Maeve her symptoms were 'all in her mind'” theguardian.com/society/articl…

Silje Reme, Prof. of Psychology, claimed that the police were on alert during a seminar with a psychological view on #MECFS. A Norwegian newspaper that published her allegation has now concluded that it is baseless. It doesn’t look good when researchers smear critical patients.

"The increased activity during the second test indicated that the ME/CFS brains did not adapt to the first cognitive test. Instead of becoming more efficient and using less energy during the second test, their brains used more energy during the second healthrising.org/blog/2024/08/1…

Secret seminars for collaborators, false allegations of police protection, panic button for Professor, #MECFS advocates compared to animal rights activists, repeated claims of death threats unsupported by evidence … There seems to be an epidemic of paranoia in the BPS ranks! 🙄

Over 11,300 people and organisations have signed a petition to withdraw the review. The authors won't defend their own work leaving Cochrane to do it for them. Why Cochrane is doing this, I don't know, but it's not about protecting patients change.org/p/cochrane-wit…

Available now! International ME Conference 2024 videos. Learn about the NIH #MECFS Research Roadmap + updates from researchers including #MECFSnet partner Maureen Hanson Cornell Center for Enervating NeuroImmune Disease. Watch: ow.ly/lxk850T5cpA

Wessely's biopsychosocial model makes ME patients unreliable witnesses to their own bodies. The model says patients are catastrophising and misunderstand the symptoms of recovery and think this an ongoing illness instead of normal aches and pains of recovery - @JohnTheJack 🔥🙏

Den biopsykososiale modellen bærer i seg ideen om at ME-pas. ikke skal lyttes til og stoles på, og er hovedårsaken til #thegreatestMEdicalscandal Skriver om dette i boka Gjør ingen skade s.127-128. Ser fram til at norske medier forteller ME-historien. Programmet over anbefales.

Nina Pedersen, Fysioterapeut: ... om politikere vet hvordan uføretrygd blir innvilget, eller om de bare uttaler seg ut ifra hva de tror? ... Kan Erna forby unge å bli trafikkskadde, få kreft, hjertefeil, MS, ME, bli født med fødselsskader? adressa.no/midtnorskdebat…

FUNCAP now has a dedicated website. The website has downloads in various fromats of FUNCAP in Norwegian and English, and will have other translations later. funcap.no

FUNCAP is now available in Swedish funcap.no/funcap-in-swed…

Thank you!

We are in the early stage of the ongoing fight against COVID-19 and airborne illness transmission. Consider Barry Marshall's Nobel Prize. In the 1980s, Marshall went against the prevailing dogma to show stomach ulcers were caused by h pylori bacteria -- not stress. It was a

Kvinnehelseutvalgets rapport er en skandale for ME-syke. aftenbladet.no/meninger/debat…

What are the typical PEM SYMPTOMS? Prof Todd Davenport explains on longcovidtheanswers.com Credible Long COVID education to stop gaslighting. #longcovid #longhauler #longcovidtheanswers Todd Davenport @longcovid @longcovidsos #mecfs

Tråd som er verdt å lese.

Kan luftrensere bidra til å redusere sykefraværet? Svaret er ja. "Placing HEPA air filters into classrooms... reduced the number of covid-19-related absences among students by more than 20 per cent" Da er færre foreldre hjemme m/sykt barn Tråd newscientist.com/article/239871…