Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile
Swapna Kakani, MPH

@swapnaspeaks

#ptexp #raredisease Spkr|Expert|Advocate. @TEDx Spkr. #ShortBowelSyndrome Warrior. #SmallIntestineTx Recipient.Founder of the gutsy perspective

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linkhttp://www.swapnakakani.com calendar_today04-09-2009 05:58:04

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Rare Disease Innovations Institute (@rdii_org) 's Twitter Profile Photo

Join us for THRIVE! A virtual conference that is dedicated to creating and passing Rare Disease Advisory Council (RDAC) legislation, building an RDAC, and making it effective for years to come. It is free to attend. Register at: rdii.org/events/ #RDAC

Join us for THRIVE! A virtual conference that is dedicated to creating and passing Rare Disease Advisory Council (RDAC) legislation, building an RDAC, and making it effective for years to come. It is free to attend. Register at: rdii.org/events/ #RDAC
Adeeti Chiplunker MD (@a_chiplunkermd) 's Twitter Profile Photo

#MondayNightIBD Lori Plung Swapna Kakani, MPH Anthony Squillaro @GalanteMD Colleen Webb MS RDN David M. Schwartzberg, MD Waseem Ahmed DMoulton Sean-Patrick Prince, MBBS, MPH Diana Cheung Pauli @ReicheWill 1/8 Anatomy & Definitions ✂️ < 200cm SB remaining 🟰#SBS ✂️ > 200cm SB remaining ➕intestinal failure (need for IVF/PN, multiple vitamin deficiencies) 🟰#SBS too ✂️ Intraop bowel 📏 GREATLY appreciated! ✂️ Colon in continuity? 🔑 Anatomy guides diet & treatment recommendations

Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Join us on Facebook our family panel of parents personally affected by lack of a #newbornscreening diagnosis is speaking now! #rarediseases EveryLife Foundation

Rare Disease Innovations Institute (@rdii_org) 's Twitter Profile Photo

Are you getting excited about our upcoming THRIVE! virtual conference? We are! Meet Gina Glass, Vice Chair of the Nevada Rare Disease Advisory Council. Gina will be speaking on building an RDAC and how the Nevada RDAC created effective structure and operations. #RDAC

Are you getting excited about our upcoming THRIVE! virtual conference? We are! Meet Gina Glass, Vice Chair of the Nevada Rare Disease Advisory Council. Gina will be speaking on building an RDAC and how the Nevada RDAC created effective structure and operations. #RDAC
Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Are you interested in RDACs, partner with them, are you a member, do you want to learn more? Join us for this inaugural event dedicated to helping RDACs THRIVE! Tuesday April 11, 12-3 est on Zoom! It is going to be great!

Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Took a break from Twitter bc of life and my second shoulder replacement due to #AVN now back to traveling. Presenting research at #CIRTA2023 in Chicago

Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Thank you Dr. Modi for doing a good job discussing a landscape summary of QoL literature in IF and presenting our gutsy perspective’s 2 articles on QoL! CIRTA2023

Thank you Dr. Modi for doing a good job discussing a landscape summary of QoL literature in IF and presenting our gutsy perspective’s 2 articles on QoL! <a href="/cirta2023/">CIRTA2023</a>
Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Great talk on psychosocial aspects pre and post transplant by Clinical Health Psychologist, Heather Eisele from UI Health at CIRTA2023. As a person 9 yrs post #smallintestinetransplant, I feel happy that this topic is being presented this thoroughly! Thank you!

Great talk on psychosocial aspects pre and post transplant by Clinical Health Psychologist, Heather Eisele from <a href="/UIHealth/">UI Health</a> at <a href="/cirta2023/">CIRTA2023</a>. As a person 9 yrs post #smallintestinetransplant, I feel happy that this topic is being presented this thoroughly! Thank you!
Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Excited to be at the opening session going on right now! It is going to be a great conference. Check out our talk on Monday on the patient, caregiver, clinician, perspective - “From Hospital to Home Care: Bridging the Gap in the Patient Experience” #AVASM23

Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Katie Boston-Leary giving the opening #AVASM23 keynote on the challenges of nursing today and how we individually can own the change by changing our thinking and “making peace with our lions”

Katie Boston-Leary giving the opening #AVASM23 keynote on the challenges of nursing today and how we individually can own the change by changing our thinking and “making peace with our lions”
Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Only 57% of nursing students receive peripheral IV instruction! Bastian Braun with Association for Vascular Access has created PIVC curriculum (101, 201, 301, 401) for nursing schools to adopt! UAB School of Nursing do you want to bring in this education?

Only 57% of nursing students receive peripheral IV instruction! <a href="/BBraun/">Bastian Braun</a> with <a href="/ISaveThatLine/">Association for Vascular Access</a> has created PIVC curriculum (101, 201, 301, 401) for nursing schools to adopt! <a href="/UABSON/">UAB School of Nursing</a> do you want to bring in this education?
Swapna Kakani, MPH (@swapnaspeaks) 's Twitter Profile Photo

Thanks to members of the outpatient team I am able to fill my transplant immunosuppression specialty med. Only place in town I can get it! It is such a fast and seamless process to get my refills every month.