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Our survey with James Lind Alliance is closing on the 3rd of September! If you're a #burnsurvivor tell us what's important to you so together we can shape the future of global #burns research and improve patient outcomes. The survey is in 8 languages here burnsresearch.bristol.ac.uk/survey1/

Starting the day with the wonderful data collectors for the James Lind Alliance Diabetic Eye Disease PSP: Kenya, Ethiopia, Pakistan, Nepal, Fiji Fred Hollows IAPB Fabrizio D'Esposito

A few words about the loss that the Priorities in Global Burns Research James Lind Alliance PSP feels following the death of our lead Prof Amber Young last month. We draw inspiration from her strength to fulfill what she started and identify what matters most for burns research. jla.nihr.ac.uk/news/in-memory…

Help #research into spinal muscular atrophy (#SMA) focus on what matters to you as a health care professional. Complete SMA-Europe ‘s survey, available in several languages at: bit.ly/3vadTRR James Lind Alliance Vanessa Christie-Brown 🇫🇷🇬🇧🇧🇪🇪🇺💙 #mysay4SMA #SMAPSP #smaresearch #SMA

‼️ SURVEY IS LIVE ‼️ We are looking for your ideas for the important questions to research to shape the future of outpatient service delivery. #patients #PatientCare #NHS #healthcare #Health #ENGLAND #research James Lind Alliance Complete the survey here 👇🏼 surveymonkey.co.uk/r/NYTZNNQ

Just so proud and delighted to see the James Lind Alliance Childhood Neuro Conditions PSP launch our Top 10. A labour of love throughout the pandemic...now to find the answers...

And here we are. Absolutely delighted to have won. Great night MRS more tomorrow when we’ve calmed down. Sciencewise Genomics England

Gosh gosh gosh! Hopkins Van Mil We won! So delighted that our work with 130 people across the UK to help shape the future for the Genomics England newborn genome programme was recognised by the MRS's Public Policy/Social Research award.

🚨Atrial Fibrillation is a cause of 1 in 5 strokes, but an estimated half a million people are living with AF and don't know it. This #StrokePreventionDay, check your pulse. Find out how at: stroke.org.uk/rhythm 💓#IsYourRhythmRegular ?

Please share this with anyone you know who has spinal muscular atrophy or who works with SMA - just say what matters and what could benefit from more research.

Here's Veronique, a member of our James Lind Alliance SMA-Europe Spinal Muscular Atrophy PSP and who lives with SMA. She gives a warm welcome to take part in our survey: so over to you, what needs more research? youtu.be/blSThcMEGpY

Well this is a great way to start the week! Holly from Priorities in Global Burns Research in Bristol chatting with Fabrizio D'Esposito and the Diabetic Eye Disease team IAPB Fred Hollows in Melbourne about evidence checking and summary question formation for our James Lind Alliance PSPs #SharingIsCaring

Pls RT. Anyone who has visited or works in an outpatient clinic please complete the below. James Lind Alliance is a fantastic initiative helping us all be involved in setting priorities for research British Dermatological Nursing Group

Veterans, families, friends, carers and the healthcare professionals who work with them – please tell us what needs investigating to help improve care James Lind Alliance Office for Veterans' Affairs survey launches today: jla.onlinesurveys.ac.uk/veterans-healt…

For #WorldSickleCellDay, we asked John James OBE, CEO of Sickle Cell Society and Suzannah Kinsella of the James Lind Alliance to join us on The G Word.  With Marie Nugent from our Diverse Data team, they discuss setting research priorities for sickle cell and genomics: ow.ly/sMTT50OREWK

Check out our latest blog about an initiative aiming to shine a much brighter light on community nursing. jla.nihr.ac.uk/news/community… James Lind Alliance

Over 1,000 veterans, families, carers & healthcare professionals told Office for Veterans' Affairs about their questions & concerns. Please have your say by choosing your 10 most important questions from this list southampton.qualtrics.com/jfe/form/SV_dm… #VeteransHealthPSP DMWS Op NOVA Forces Employment Charity

Pick your top priorities for research for the most #premature babies 👇 Have your say and help prioritise the 🔝 10 unanswered questions about the most premature babies for future research 👇 bit.ly/45Qjn4h #RT Most Premature Babies Priority Setting Partnership Murdoch Children's Research Institute (MCRI) NPEU-Oxford James Lind Alliance

Together with Wellcome Connecting Science Engagement and Society, NIHR IBD BioResource 💙 and many colleagues from the UK IBD Genetics consortium, we held a workshop to ask IBD patients if they would like return of #additonalfindings, what their hopes and concerns are around this, and how they would like this done.