Sometimes it’s the small things ❤️ Sorting through the piles of envelopes & leaflets that we have just left at the side when they’ve been posted and come across this. Almost missed the… instagram.com/p/BsXy472n0LT/…

Who remembers our 2 ferry trips across the Mersey? ⛴ Both nights were a hit! Everyone enjoyed themselves and were asking “when’s the next?” 🤔 🔆Well, here it is!🔅 A night on the ferry with… instagram.com/p/BvfFT3wDmcy/…

Massive Well Done to Tiger Roll!! 🐎 Grand National Randox Health Aintree Racecourse - We are remembering the 41st runner from last year The Spider-Ede Appeal never forgotten Edie 🕷❤️ #GrandNationalDay #RandoxHealth #AintreeRaces #Spiderede

Today it has been 6 months, half a year since we watched helplessly as our beautiful daughter took her last breath lay in our arms💔 When you have a child you don’t ever expect them to be… instagram.com/p/Bwj4gpajzVE/…

Are you coming to our Spider-Ede Sunset Cruise? ⛴ Tickets are limited, get yours quick 🎟💃🏽🕺🏽#merseyferry #wirral #liverpool #onaboat #theorchardthieves

🚢☀️🥂ALL ABOARD!!🍻☀️🚢 Sunday 2nd June we have our popular Spider-Ede cruise setting sail! Come along for live music, full bar and incredible atmosphere onboard the Mersey Ferry!! 🕺🏻💃🏻🥂🍻🏝🚤☀️ We are raising money… instagram.com/p/BxfnGRNjMMV/…

Today we have taken time some quality time and managed a family day out at the zoo 🐘🦁🐍🐵🦒🐸 A group of our beautiful friends had put a collection together and in Edie’s name made a donation to Chester Zoo because of… instagram.com/p/Bx0O34JDFQJ/…

wirralglobe.co.uk/news/17662455.…

You all remember our fantastic John Hammond, Wirral’s local “running man”. Today he set off again on one of his crazy fundraising challenges. He is running the length of the Uk from John O’Groats to Lands End!! 🗺 🇬🇧… instagram.com/p/Bx2rxCrjBVt/…

The last 7 months have been awful. After we lost Edie we had many well wishes, cards, letters, gifts, notes. At the time we couldn’t read them 💔 Today we pulled the rainbow bag out that Iwe had “shoved them all in”.… instagram.com/p/ByBGJZ2jsBj/…

🌟Raffle time🌟 As you all know, we are continuing to raise funds to help with DIPG research, in the hope that one day a cure is found and families no longer have to go through the heartbreak of what we have❤️ This… instagram.com/p/ByFnjqgDi6f/…

🏅Keep going John🏅 Super John Hammond is running the length of the Uk to raise money for 5 local charities! John o’groats to Land’s end, 874 miles! 🏃🏻‍♂️🏃🏻‍♂️ He’s over half way and doing amazing! Running around… instagram.com/p/ByPXs5XDhE_/…

"If a drug company came up with a drug for DIPG, it would take them 10 years, and cost them 100 million bucks, and they would treat 15-to-20 kids a year - so there is no return on investment for them," Dr Dun… instagram.com/p/BySLm3YDB0I/…

Day 17 of running 40-60 miles!! He’s on the final leg of his epic journey!🏃🏻‍♂️🏃🏻‍♂️ Super John Hammond is almost finished running the length of the UK! 🇬🇧 He’s already ran more than 800 miles over the consecutive… instagram.com/p/ByfBX-MDCXI/…

We know we haven't really done any personal posts for a while, as you can imagine, it has been and still is, extremely hard for us all as a family 💔 We just want to give you a little update, you all helped us so… instagram.com/p/BzTRbM1D_u_/…

We now believe Edie is watching over us, has sent us this blessing and she would be so pleased to have a new little brother. She loved babies and was such a fantastic big sister to Len. That is not all. As you… instagram.com/p/BzTRdi8jjSv/…

What a touching tribute to brave Edie ❤️🕷💙 The Spider-Ede Appeal wirralglobe.co.uk/news/17772743.…

These past few weeks have been tougher than usual, even for us. Edie’s little brother Len, who is 2 and a half, started to complain his head was hurting. You cannot imagine and we couldn’t fully explain to you how… instagram.com/p/B0Bwg0sDDYy/…

Some of you may have already seen but Edie’s little brother was welcomed into the world on Sunday 8th September. This has been an emotional journey for the whole family but we are so happy with our little… instagram.com/p/B2eyY3-jgkM/…

Sunday 13th October 2019, the day we should be waking up with a big 5 year old Edie, excited to rip open her presents. Now it is a day we will spend thinking of what could of been. The first of Edie’s birthdays we… instagram.com/p/B3aDR_JDksM/…