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Inspired by all the leaders we are hearing from and grateful to CZI Science for building this amazing community! @ Andrew Liu Susan Dando Sarah Lepore #RareAsOne

Smith-Kingsmore Syndrome Foundation presented a poster last night at CZI Science society poster session highlighting the year of capacity building and our partnership with researchers to advance the science. Thank you Susan Dando and Sarah Lepore for representing SKSF! #rareasone

📣 Next week on Giving Tuesday we will kick off our campaign to support our April 2024 Smith-Kings-more Syndrome Global Family Conference in Chicago, IL. ☀️Join us as we bring hope to our community by bringing families together! smithkingsmore.networkforgood.com/projects/21182…

#GivingTuesday reminds us of the power of generosity and the joy that comes from giving! We invite you to make a gift in support of bringing our Smith-Kingsmore Syndrome community of families and researchers together in April! smithkingsmore.networkforgood.com

A successful 3rd SKS Family and Research conference thanks to our MSA, SKS Board and especially thank you to our SKS Community 💕 #smithkingsmoresyndrome #rarediseaseawareness #familyconference

We are looking forward to connecting with Pediatricians, researchers and clinicians at PAS 2024!

Excited to be at #PAS2024! Come see Susan Dando and Sarah Lepore in the #advocacy section of Exhibit Hall! #rarediseaseawareness #cureSKS #smithkingsmoresyndrome

Come see us on day 2 poster session Pediatric Academic Societies! Stress ball brains are super popular! #rarediseaseawareness #RareAsOne

Thank you to all who stopped by to learn about ultra rare Smith-Kingsmore Syndrome! It has been an honor to share information about SKS with all of you! #PAS24selfie #PAS2024

🧡 It's International Self-Care Day! SKS life can be really hard, and REAL self-care can feel out of reach on many days. Sending love to all our families and hope for some care and respite for you 🩷

🩷 On August 1st we kick off our FIFTH International Smith-Kingsmore Syndrome Awareness Month! Join us to celebrate our community and raise funds to accelerate SKS research. 🩷 Your Help = Our Hope! Click here to set up a personal fundraiser today! smithkingsmore.networkforgood.com/projects/23001…

🩷 International Smith-Kingsmore Syndrome Awareness Month is here - and it's our 5th birthday!! 🩷 We have a bold goal of raising $100,000 for SKS research and programs! Our SKS Foundation Board have pledged a match of $50,000. Your Help = Our Hope!! smithkingsmore.networkforgood.com

💡Awareness is the first step towards understanding and taking action! During the month of August, we invite you to educate your community about our ultra-rare condition through our daily ☀️SKS Fact of the Day ☀️ during the month of August. 💡smithkingsmore.org

Awareness is the first step towards understanding and taking action! During the month of August, we invite you to educate your community about our ultra-rare condition through our daily ☀️ SKS Fact of the Day ☀️ smithkingsmore.org

Daily during Smith-Kingsmore Awareness month, we are sharing SKS facts! Visit our website to learn more! Donate today to support our mission! smithkingsmore.networkforgood.com

SKS Fact of the Day: The Power of Community! 🌟 Since 2019, our incredible families and community have generously funded five years of groundbreaking Smith-Kingsmore syndrome research. Together, we’re making a difference! 💪❤️ smithkingsmore.networkforgood.com

🌟At the Smith-Kingsmore Syndrome Foundation, we aim to fund pioneering research! 🌟In 2020, we awarded UF $170,000 to advance SKS research. 🌟 Help us sustain this momentum by donating today! smithkingsmore.networkforgood.com

🩷 On August 15th, we celebrate SKS Awareness DAY! And it's our 5th birthday celebration! 🩷 The SKS Foundation has funded five years of SKS research - help us keep this going by sharing this link with your friends and family and donating today! smithkingsmore.networkforgood.com