Ramses Temmerman (@ramsestemmerman) 's Twitter Profile
Ramses Temmerman

@ramsestemmerman

Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid.

ID: 2742308543

linkhttps://www.youtube.com/c/mecvsinfokanaal calendar_today14-08-2014 02:27:35

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ME/CFS Skeptic (@mecfsskeptic) 's Twitter Profile Photo

1) This study from Cornell University tested more than 6000 proteins before and after two exercise tests. It found altered patterns in ME/CFS patients compared to controls, particularly in proteins involved in the immune system, signal transduction, and muscle contraction.

1) This study from Cornell University tested more than 6000 proteins before and after two exercise tests.

It found altered patterns in ME/CFS patients compared to controls, particularly in proteins involved in the immune system, signal transduction, and muscle contraction.
Michael R Scoma MD (@drscomame_cfs) 's Twitter Profile Photo

Severe and very severe ME/CFS patients are the sickest patients I’ve ever seen - even compared to septic transplant or end-stage cancer patients. The unrelenting suffering and lack of research or definitive treatments puts severe ME/CFS on another level. Nothing compares...

Ramses Temmerman (@ramsestemmerman) 's Twitter Profile Photo

Rob Wüst We need a tool like this in Europe and also for Android devices. Pilot study shows that during #PEM blood flow is more reduced to the brain. Rob Wüst ⬇️ #MEcfs #LongCovid lumiahealth.com/blogs/news/red…

Miriam E. Tucker (@miriametucker) 's Twitter Profile Photo

Zachary Grin, PT, DPT Blame aside, psychological factors do NOT play a "major role" in ME/CFS, a neuroimmune condition often triggered by viruses. Certainly psychological issues can arise FROM it, but that's true of any chronic medical condition.

ME/CFS Skeptic (@mecfsskeptic) 's Twitter Profile Photo

1) The British group that started transfer experiments of fibromyalgia antibodies into mice now reports that this is probably mediated by mast cells.

1) The British group that started transfer experiments of fibromyalgia antibodies into mice now reports that this is probably mediated by mast cells.
ME Research UK (@meresearchuk) 's Twitter Profile Photo

Whether autoimmunity is involved in ME/CFS has often been asked and produced mixed results, Prof. Dr Carmen Scheibenbogen, former ME Research UK-funded researcher, gave a fascinating talk providing evidence for autoimmunity in ME/CFS and long COVID. tinyurl.com/mx86crua

Whether autoimmunity is involved in ME/CFS has often been asked and produced mixed results, Prof. Dr Carmen Scheibenbogen, former ME Research UK-funded researcher, gave a fascinating talk providing evidence for autoimmunity in ME/CFS and long COVID. tinyurl.com/mx86crua
ME-Gids.net (@me_gids) 's Twitter Profile Photo

24.000 handtekeningen ingezameld voor #PAIS-patiënten zoals #MEcvs #LongCovid #fibromyalgie #POTS #Lyme ! Om de petitie in te dienen in NieuwsuitDeKamer, zijn er 25.000 Belgische handtekeningen nodig, verspreid over de 3 gewesten. Teken en deel de petitie ✍️openpetition.eu/!jfzqc

24.000 handtekeningen ingezameld voor #PAIS-patiënten zoals #MEcvs #LongCovid #fibromyalgie #POTS #Lyme !  

Om de petitie in te dienen in <a href="/DeKamerBE/">NieuwsuitDeKamer</a>, zijn er 25.000 Belgische handtekeningen nodig, verspreid over de 3 gewesten. 

Teken en deel de petitie ✍️openpetition.eu/!jfzqc
ME Centraal (@mecentraal) 's Twitter Profile Photo

Hartverwarmende en coole actie: Tim schildert een muur voor zijn zus die uit de maatschappij verdween vanwege POTS. Voorbeeld van hoe (een deel van de) muur wordt:

Hartverwarmende en coole actie: Tim schildert een muur voor zijn zus die uit de maatschappij verdween vanwege POTS.

Voorbeeld van hoe (een deel van de) muur wordt:
Prof. Akiko Iwasaki (@virusesimmunity) 's Twitter Profile Photo

Check out our new review, "The lingering shadow of epidemics: post-acute sequelae across history" by Drs. Christine Miller and janna moen, phd is still masking 😷. We highlight historical accounts of post-acute infection syndromes (PAIS) through the centuries 👇🏼 #LongCOVID cell.com/trends/immunol…

Jack | amatica health (@jackhadfield14) 's Twitter Profile Photo

New research shows major damage in the brain stress system of people with very severe ME/CFS. The key finding: a near-loss of the neurons that start the cortisol stress response. This helps explain low cortisol and many symptoms. Let’s break it down in simple language.

ME/CFS Skeptic (@mecfsskeptic) 's Twitter Profile Photo

1) Nature had a brief news article about the German investment in research on ME/CFS and Long Covid. Some quotes from scientists: “This is really major funding,” says Rafael Mikolajczyk, an epidemiologist at Martin Luther University Halle-Wittenberg in Germany.

1) Nature had a brief news article about the German investment in research on ME/CFS and Long Covid. 

Some quotes from scientists:

“This is really major funding,” says Rafael Mikolajczyk, an epidemiologist at Martin Luther University Halle-Wittenberg in Germany.
David Lingenfelter, PhD (@dlingenfelter) 's Twitter Profile Photo

Long COVID is not caused by lingering virus: no plasma viral load was found, and antivirals failed. Instead, it's driven by chronic inflammation, immune exhaustion, and metabolic disruption—lasting over 180 days post-infection. nature.com/articles/s4159…

Long COVID is not caused by lingering virus: no plasma viral load was found, and antivirals failed.

Instead, it's driven by chronic inflammation, immune exhaustion, and metabolic disruption—lasting over 180 days post-infection.
nature.com/articles/s4159…
ME Research UK (@meresearchuk) 's Twitter Profile Photo

Researchers propose that In ME/CFS and long COVID, autoimmunity may occur in which the immune system attacks the body's own tissues as well as the virus due to molecular mimicry. Read more: tinyurl.com/yck56878

Researchers propose that In ME/CFS and long COVID, autoimmunity may occur in which the immune system attacks the body's own tissues as well as the virus due to molecular mimicry.

Read more: tinyurl.com/yck56878
Prof. Karl Lauterbach (@karl_lauterbach) 's Twitter Profile Photo

Hier die Anhörung von Experten zu MECFS und Postinfektiösen Erkrankungen im Forschungsausschuss heute. Sehr spannende Beiträge zum Stand der Forschung, sie nimmt Fahrt auf. Jetzt beteiligen sich auch Pharmafirmen, die 500 Mio sind Katalysator webtv.bundestag.de/pservices/play…

ME-Gids.net (@me_gids) 's Twitter Profile Photo

Er is 1 domein waar Steven Van Gucht in 2026 hard op vooruitgang hoopt: #LongCovid & andere #PAIS zoals #MEcvs Beloftevol onderzoek focust op virale restanten, aanhoudende immuunactivatie, kleine bloedklonters afwijkingen in het metabolisme of vaatwanden. eoswetenschap.eu/gezondheid/voo…

Ramses Temmerman (@ramsestemmerman) 's Twitter Profile Photo

“Veel patiënten met #MEcvs zijn letterlijk onzichtbaar geworden en kunnen niet meer functioneren in de maatschappij. Sommige kunnen niet meer buitenkomen en liggen 24/7 in bed. Het is belangrijk dat die mensen blijven gezien worden.” #DWW VRT NWS StuBru nieuwsblad.be/regio/oost-vla…

ME-Gids.net (@me_gids) 's Twitter Profile Photo

‘De onzichtbaarste zieken waren niet in staat hun stem te laten horen tijdens #dewarmsteweek’ Ernstig zieke #MEcvs-patiënten liggen uitgeput in een donkere kamer omdat elke zintuiglijke prikkel hen nog zieker maakt. Lezersbrief Ramses Temmerman humo humo.be/ts-bdf3ce5e/

jim faas 🍀 (@jimfaas) 's Twitter Profile Photo

🟦 VERS VAN DE ‘PAIS’ PERS 🟥 FACTSHEET MESTCELACTIVATIESYNDROOM (MCAS) 🔲 voor brede verspreiding, in vervolg op de factsheets over PEM en POTS 🟧 wie bij het begeleiden en beoordelen van Longcovid en andere PAIS-patiënten geen kennis heeft van de gevolgen die PEM en POTS

🟦 VERS VAN DE ‘PAIS’ PERS 🟥 FACTSHEET MESTCELACTIVATIESYNDROOM (MCAS)

🔲 voor brede verspreiding, in vervolg op de factsheets over PEM en POTS 

🟧 wie bij het begeleiden en beoordelen van Longcovid en andere PAIS-patiënten geen kennis heeft van de gevolgen die PEM en POTS