If you haven't completed this brief ranking survey we would really love your feedback! PXE International wants to know what you need the most and how to best serve you. 7542uff5.optimalworkshop.com/optimalsort/8d… Please let us know if you have any questions!

Our current survey about what you want from PXE International will close tomorrow at 5pm! Please take a few minutes to fill this out so that we can meet your needs! We'll post more of these in the future so we can learn how to best serve you. 7542uff5.optimalworkshop.com/optimalsort/8d…

Don't forget to fill out this brief survey about your needs. It closes in ONE HOUR! Thank you!! Let me know if you have any questions. 7542uff5.optimalworkshop.com/optimalsort/8d…

So far 18.9% of PXEers are reporting that they are legally blind. What about you? #ICYMI We’re running a survey! If you are affected by PXE please take 10 minutes to share your experience here: pxe.org/research/commo… Survey closes 8/19! Thank you to everyone who's answered!

So far 346 out of 4200 PXEers have completed our research survey! Thank you so much to everyone who’s filled it out. If you haven’t please take 10 minutes to share your experience and help us find the answers here: pxe.org/research/commo… SURVEY CLOSES MONDAY (8/19)!

Legal blindness? Kidney stones? Joint stiffness? Eye injections? None of the above? Tell us about your PXE! Join 452 other people (we need at least 750!) who have responded. If you haven’t filled it out yet please take 10 mins. to share your experience: pxe.org/research/commo…

Happy Halloween from PXE International!

PXE International was able to identify our members' top priorities in less than four weeks. We used @LunaDNA_ 's CDI and discovered insights that were not available to us in our 28 years of listening. CDI took away bias and heard the quiet voices.