The vision impairment in Persons with Albinism is permanent, BUT, it does not worsen over time. #AlbinismAndVision #AlbinismAwareness #AlbinismIsHumanism #AlbinismAfrica #AlbinismKenya #PositiveExposureKenya

Until governments and communities begin to invest heavily into ZERO stigma for people with Albinism, like they have done with HIV/AIDS, we have a long way to go. AlbinismIsHumanism #AlbinismAfrica #AlbinismKenya #PositiveExposureKenya

Many rare diseases cause chronic health problems or are even life-threatening and the impact on the quality of life of affected patients, of whom many are children, is significant. It is estimated that 350... facebook.com/36670336003956…

Many rare diseases cause chronic health problems or are even life-threatening and the impact on the quality of life of affected patients, of whom many are children, is significant. It is estimated that 350... facebook.com/36670336003956…

Rare disease is defined as a genetic condition that affects less than 200 ,000 the definition according to WHO changes with countries for example in EU, it is a condition that affects fewer than 1 in 2000 people while in... who.int/bulletin/volum…

We may be RARE but we've got ROAR! join us in celebrating the rare diseases and condition come February 28th 2019. How would you SHOW YOU CARE? SHARE IF YOU CARE. #RareDiseaseDayLoading #RareDay #ShowYourRare... facebook.com/36670336003956…

They came, showed their rare and care for the rare for alone we are rare but together we are strong. This is how it went down yesterday during the rare diseases and conditions day where we were able to converse... facebook.com/36670336003956…

Among the below mentioned rare conditions, which condition or disease do you know a fact or two about?. Interact with us to know even better about these conditions #Albinism #psoriasis #alopecia #celebralPalsy... facebook.com/36670336003956…

Public Notice: UN Independent Expert on albinism. Dear friends, Theme for International Albinism Awareness Day 2019 I am happy to announce the theme for this year’s celebration of international albinism... facebook.com/36670336003956…

As we are awaiting to celebrate the #internationalWomensDay this week, women and girls have been more affected by the violence and attacks on persons with albinism. Despite this they have #stillstoodStrong and... facebook.com/36670336003956…

“A strong woman is the one who can dare to raise her voice for the cause she believes in, and this strength lives in a corner in every women’s heart, it just needs to be searched" Have we searched? Have we... facebook.com/36670336003956…

How does the environment impact to us persons with albinism better still how do we as persons with albinism impact to the environment surrounding us Give us your views and insight. #AlbinismIsHumanism... facebook.com/36670336003956…

Did you know? In 2011, the UN General Assembly adopted a resolution which recognized happiness as a “fundamental human goal” and called for “a more inclusive, equitable and balanced approach to economic growth that... facebook.com/PExposureKe/po…

PE-Kenya Team officially welcomes their Board of Advisors . Stay all tuned for the great things ahead. To our Board members , Thankyou for accepting to be part of our journey in transforming lives of persons with albinism. Genesis 50:19-21 — with Truphosa Jowi and 3 others.

Proud moments to the albinism community in Africa. Because we are daughters and sons of Africa! REGIONAL ACTION PLAN ON ALBINISM adopted by the the AU’s specialized technical committee on social development... facebook.com/36670336003956…

From Positive Exposure Kenya family. We wish to pass our gratitude for those who attended the understanding albinism training for persons and parents of children with albinism within Nairobi and the environs... facebook.com/36670336003956…

This is the way to go after the recent adoption of the Regional action plan by the African Union. #AlbinismIsHumanism #ChangeHowYouSee #SeeHowYouChange #StillStandingStrong Jane Waithera Albinism Society of... facebook.com/36670336003956…

In our endeavour to reach everyone, we are mentoring young persons with albinism to be able to advocate for themselves. #AlbinismIsHumanism #AlbinismAfrica #InspireEngageTransform #MotivationalMonday

If not us, who? if not now, when? For us PWA it is time we stand out to be counted in the ongoing census here in Kenya. Feel free to give out more information about albinism to the enumerators in order for it to be captured. What is your experience so far? #Censuskenya2019