
PCD Support UK
@pcd_uk
We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.
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https://linktr.ee/PCDSupport_Comms 15-03-2012 15:53:02
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Priorities and Barriers for Research Related to Primary Ciliary Dyskinesia Myrona Goutaki ERS publications openres.ersjournals.com/content/early/…



In case you missed the brilliant Fiona Copeland BEM and Emilie Wattellier watch the recording here beat-pcd.squarespace.com/training-schoo…



We are starting our inflammation in PCD session with our own Amelia Shoemark talking about neutrophilic inflammation #beatpcd2024




Let’s make #WorldCleanAirDay every day. Patients have a special voice in demanding action on air pollution & climate change. Invest in #CleanAirNow #BreatheLife #WorldCleanAirDay FENAER PACIENTES Longfonds Asoc. Pacientes con EPOC empowersankar EFA Patients ERS ERS @ELF World Health Organization (WHO)


We're incredibly proud of our treasurer Abdullah, who has done an excellent job chairing the afternoon sessions of European Lung Foundation's #PatOrgDay2024 ERS #PCD #PCDSupportUK Abdullah Ihsan



Come to PS-20 for @Leonie_Schreck results on exacerbations in #PCD #ERSCongress Claudia Kuehni Myrona Goutaki


Following #WorldCleanAirDay and #HealthyLungsforLife in Vienna, Dr Maria Neira - Director of Public Health, Environment and Social Determinants of Health at the World Health Organization (WHO) - talks about ensuring patients are empowered and informed on key risk factors! #ERSCongress ERS


This week, our Chair Katie is chatting all about PCD to scientists, clinicians, and other patient support groups at #Cilia24 @EuroCilia2024 UK Cilia Network Ciliopathy Alliance



