Nura Makki (@nuramakki81) 's Twitter Profile
Nura Makki

@nuramakki81

ID: 43897568

calendar_today01-06-2009 14:56:21

258 Tweet

176 Takipçi

585 Takip Edilen

Carmela Chillery-Watson BCyA (@cure4carmela) 's Twitter Profile Photo

I am a very excited girl looking forward to representing Muscular Dystrophy UK at BGC Charity Day Really looking forward to a repeat office floor football re-match with Sam Alladyce inbetween trading. I'm not sure if he knows my skills have improved since I started powerchair football ⚽⚽⚽

I am a very excited girl looking forward to representing <a href="/MDUK_News/">Muscular Dystrophy UK</a> at <a href="/BGCCharityDay/">BGC Charity Day</a> Really looking forward to a repeat office floor football re-match with <a href="/SamAlladyce/">Sam Alladyce</a> inbetween trading. I'm not sure if he knows my skills have improved since I started powerchair football ⚽⚽⚽
Nura Makki (@nuramakki81) 's Twitter Profile Photo

Thank you Hayley Lloyd for speaking so honestly about what it means having a child diagnosed with #musculardystrophy. We will not stop fighting. A whooping amount raised at the #MicroscopeBall in aid of Muscular Dystrophy UK

Nura Makki (@nuramakki81) 's Twitter Profile Photo

Last night Muscular Dystrophy UK was at Puccini’s Restaurant. Its owner Michele Pucci is a true philanthropist. Thank you for organising another great fundraiser, a room full of famous faces, football legends and genuine generosity. To date Michele raised over £100K for the charity.

Last night <a href="/MDUK_News/">Muscular Dystrophy UK</a> was at Puccini’s Restaurant. Its owner Michele Pucci is a true philanthropist. Thank you for organising another great fundraiser, a room full of famous faces, football legends and genuine generosity. To date Michele raised over £100K for the charity.
Nura Makki (@nuramakki81) 's Twitter Profile Photo

Today, breakfast really is the most important meal of the day. Exciting to share knowledge and inspiration with colleagues across the sector and help our charities, day after day and pound after pound #BreakfastClub #EveryDayCounts

Today, breakfast really is the most important meal of the day. Exciting to   share knowledge and inspiration with colleagues across the sector and help our charities, day after day and pound after pound #BreakfastClub #EveryDayCounts
Muscular Dystrophy UK (@mduk_news) 's Twitter Profile Photo

“I try to keep positive and live for the present”. Hayley talks about how important emotional support is for parents like her and young people like her son Tommy, who has #LGMD. Read her story here >> bit.ly/2WOzHip #WorldMentalHealthDay #EveryDayCounts

“I try to keep positive and live for the present”. Hayley talks about how important emotional support is for parents like her and young people like her son Tommy, who has #LGMD. Read her story here &gt;&gt; bit.ly/2WOzHip #WorldMentalHealthDay #EveryDayCounts
Nura Makki (@nuramakki81) 's Twitter Profile Photo

I woke up with major #FOMO on #MDUKConf19 so I visited my local @SOHO_Coffee_Co where Lucenea welcomed me with a delicious chocolate and cherry muffin with 20p going to Muscular Dystrophy UK. Now off to follow the conference on Facebook Live!

I woke up with major #FOMO on #MDUKConf19 so I visited my local @SOHO_Coffee_Co where Lucenea welcomed me with a delicious chocolate and cherry muffin with 20p going to <a href="/MDUK_News/">Muscular Dystrophy UK</a>. Now off to follow the conference on Facebook Live!
chapmanbdsp (@chapmanbdsp) 's Twitter Profile Photo

What a great Christmas party celebrating our business and our people! We also raised more money for our charity of the year Muscular Dystrophy UK taking us to a total of £14,000 for this great cause! Thank you to everyone who donated 🎄🎉 #christmasparty #charity #chapmanbdsp

What a great Christmas party celebrating our business and our people! We also raised more money for our charity of the year Muscular Dystrophy UK taking us to a total of £14,000 for this great cause!

Thank you to everyone who donated 🎄🎉

#christmasparty #charity #chapmanbdsp
Muscular Dystrophy UK (@mduk_news) 's Twitter Profile Photo

Breaking News: VYONDYS 53™, Sarepta Therapeutics’s exon skipping drug has been approved by the U.S. FDA. The drug could be a potential treatment for about 8% of people with #Duchenne. Read more >> bit.ly/2BmYBwX

Breaking News: VYONDYS 53™, <a href="/Sarepta/">Sarepta Therapeutics</a>’s exon skipping drug has been approved by the <a href="/US_FDA/">U.S. FDA</a>. The drug could be a potential treatment for about 8% of people with #Duchenne. Read more &gt;&gt; bit.ly/2BmYBwX
Nura Makki (@nuramakki81) 's Twitter Profile Photo

Thank you DLA Piper for having me today to talk about Muscular Dystrophy UK and thanks to Jen for sharing her story of living with the condition. I didn’t tell her so (I should have done) but today she is my hero #musclesmatter

Thank you <a href="/DLA_Piper/">DLA Piper</a> for having me today to talk about <a href="/MDUK_News/">Muscular Dystrophy UK</a> and thanks to Jen for sharing her story of living with the condition. I didn’t tell her so (I should have done) but today she is my hero #musclesmatter
Nura Makki (@nuramakki81) 's Twitter Profile Photo

Undoubtably the fun and rewarding bit of the job, collecting big generous cheques from long terms partners. Thank you Redevco since 2002 supporting Muscular Dystrophy UK

Undoubtably the fun and rewarding bit of the job, collecting big generous cheques from long terms partners. Thank you  <a href="/Redevco/">Redevco</a> since 2002 supporting <a href="/MDUK_News/">Muscular Dystrophy UK</a>
Prof Michael Hanna (@mikehanna18) 's Twitter Profile Photo

Huge thanks to the- visionary Garfield Weston Foundation for donating £5 million to our UCL Queen Square Institute of Neurology new world-leading neuroscience centre building | UC⁦UCL Brain Sciences⁩ ⁦UCL Queen Square Institute of Neurology⁩ ⁦UCLH⁩ ⁦Medical Research Council⁩ ucl.ac.uk/campaign/news/…