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Functioning duodenal NETs can evoke syndromes such as gastrinoma due to producing too much of specific hormone. These can mislead HCPs to diagnose with common gastric conditions. ✅Get a glimpse of NETs in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter

Some of the most prominent NET researchers recorded presentations especially for the global NET patient community to provide insights in NET clinical trials and how patients can get involved. 📱Watch the videos here: incalliance.org/researcher-ins… #LetsTalkAboutNETs #OncTwitter

#MEN1 is a highly penetrant disease. There is no confirmed genotype-phenotype correlation, so the severity of MEN1 cannot be predicted from the mutation. ✅Get to know MEN1 with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter #MedEd #OncTwitter

#PrimaryHyperparathyroidism (#PHPT) can occur in most patients with #MEN1. Patients are screened by determining the serum calcium. Symptoms can be: nausea, mood disorders and fatigue. ✅Help HCPs with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #MedEd

Anne from the Netherlands was first quickly diagnosed with #pheochromocytoma and had surgery, but no genetic testing was done. 20 years later the diagnosis of #MEN2A came after genetic tests. Watch all NET patient stories: incalliance.org/patient-storie… #LetsTalkAboutNETs #EndoTwitter

“Provision of understandable NET information must increase to improve patient experiences, ideally through direct contact with HCPs and NET patient associations.” ✅Check out #SCAN conclusions in the INCA article in JNE: incalliance.org/abstracts-arti… #LetsTalkAboutNETs #MedEd

Functioning duodenal NETs can evoke syndromes such as somatostatinoma due to producing too much of specific hormone. These can mislead HCPs to diagnose with common conditions. ✅Get a glimpse of NETs in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter #MedEd

The most common symptoms related to #pheochromocytomas and #paragangliomas are palpitations, sweating, headaches, high blood pressure. Symptoms are related to catecholamine excess. ✅Learn about pheo/para in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #EndoTwitter

Suspecting GEP NETs: When you see unexplained episodes of flushing or diarrhea, along the normal, standard gastrointestinal explorations, that could be a NET. ✅Get a glimpse of NETs in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter #MedEd

Join the 5th Annual Pheo Para Awareness Week, held from August 26-30, 2024, to raise awareness about the mysterious symptoms experienced by patients with #pheochromocytoma and #paraganglioma. Check out Pheo Para Alliance website: pheopara.org/connections/co… #LetsTalkAboutNETs #EndoTwitter

Michael from South Africa had symptoms for 20 years before the NET diagnosis. He was given every diagnosis related to the gastrointestinal tract. Alert HCPs to listen to the patients’ experience! Watch all NET patient stories: incalliance.org/patient-storie… #LetsTalkAboutNETs #MedEd

What is practice-changing research in NETs? How clinical trials change the NET patient outcomes? 📱Watch the presentations from prominent NET researchers: incalliance.org/researcher-ins… ✅Find a NET clinical trial worldwide: incalliance.org/find-a-trial/ #LetsTalkAboutNETs #OncTwitter

🎯Mark your calendar: September 25th, 6pm CEST, for a very important webinar from ENETS: What has changed in the new guidance ENETS manuscript in 2023? News on all GEP NETs – from some of the best NET experts. ✅Register here: enets.org/webinars.html #LetsTalkAboutNETs #MedEd

Symptoms of lung NETs mislead HCPs. X-rays of patients with symptoms can show small lesions which doctors may consider to be residual from a prior lung infection. This could be a NET. ✅Look at NETs in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #LungTwitter #MedEd

The challenge with lung NETs is lack of typical symptoms. If you don’t see the scans, lung NETs present with symptoms similar to the other lung diseases. We help #pulmonologists to know NETs with #NETInfo in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #LungTwitter

Both NET researchers and NET patient advocates realize the importance of patients being more prepared to be involved in clinical trials design. ☑️Watch the insights of prominent NET researchers on that: incalliance.org/researcher-ins… #LetsTalkAboutNETs

Julian from Germany spent 3 years with weight loss, flushing and diarrhea. He got his NET diagnosis after visiting a third doctor. 📱Watch all NET patient stories: incalliance.org/patient-storie… ☑️Get to know NETs in 11 languages: incalliance.org/net-info-packs/ #LetsTalkAboutNETs #GITwitter

👉Don’t miss the new podcast from LACNETS on “NEN Treatments and Focus on Immunotherapy”. Listen to the latest on immunotherapy, CAR T therapy, DLL3, and vaccine therapy for NENs. ☑️Find out more: incalliance.org/lacnets-podcas… #LetsTalkAboutNETs

The annual INCA Global NET Patient Advocate Summit is just around the corner. Stay tuned for the news from the global NET patient community, gathering in Segovia, Spain, on 9-10thSeptember. ☑️Check out the highlights of INCA Summit 2023: incalliance.org/inca-summit-20… #LetsTalkAboutNETs

Taiwan Neuroendocrine Tumor Patient Care Association (TNEPTCA) hosted a seminar on August 3, 2024 in Taipei, focused on NET clinical trials. Two NET clinical trials in Taiwan were presented. ☑️Read more: incalliance.org/tneptca-net-se… #LetsTalkAboutNETs