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Registration is open for our Spring 2025 Virtual Learning Session, taking place on May 21! This year's theme is Transitions. Visit fontanoutcomesnetwork.org/events/spring-… for additional details and to register!

What happens when you don’t have health insurance when you most need it? You feel helpless. I’ve been there. Our first daughter was born with a serious heart defect, and I couldn’t afford health insurance. We sat in a hospital’s charity ward. I prayed to God the doctor would

I remember the night that Republican Senator John McCain helped save the Affordable Care Act. He walked on to the Senate floor and lifted his arm just enough to flash a thumbs down. America is going to need more McCain Moments to save health care.

Proud to say I was present in Chicago

The first time I met Dick Durbin was just 12 weeks after my shootdown—at a point so early in my recovery that I could barely sit up for any length of time, even in my hospital bed.   But when Dick looked at me, he saw past the wounds, saw past the wheelchair.

As an Illinois voter, I couldn’t be prouder that our senator for the last 28 years has been one of the finest in the country. Dick Durbin has always fought the good fight on behalf of working families, and his integrity shines through in everything he does.    It’s also true that

As we reflect on Senator Durbin’s announcement, we want to make sure his championing of research for people with #CHD is not forgotten. We are thankful for his work with ACHA and the CHD community for well over a decade. Senator Dick Durbin co-sponsored the original Congenital Heart

Our Spring 2025 Virtual Learning Session is less than a month away on May 21! This year's theme is Transitions. Will you be joining us? Visit npcqic.org/events/spring-… for additional details and to register!

The next Congenital Heart Academy Cardiac Newborn Neuroprotective Network & PCICS webinar is coming up on Friday 5/16 at 10a EST! This ALL STAR lineup from celebrities in field will focus on Feeding the Neonate with CHD - Challenges & Best (Safe) Practices. Dont miss! #neurodevelopment #neonate #CHD #feeding

Excited to be there in person for the first time ever!

This is such an amazing and fantastic event that matters more than you know! BE A PART OF AMAZING NETWORKS!!!

Because of the Gracias Family and Dr Kiona Allen, children with #CHD have more resources to improving outcomes in their journey. Lurie Children's Heart Center Lurie Children's

Medicaid helps keep this toddler alive and at home. Federal cuts could put it all at risk. #Advocacy #Healthcare #Families #DevelopmentalMilestones #Resources #CHD Lurie Children's Cardiac Neurodevelopmental Outcome Collaborative chicago.suntimes.com/the-watchdogs/…

Great share by nutrition leader and mother Megan Horsley at Cincinnati Children's #NPCQIC #Singleventricle #Biventricular #CHD #Tubeweaningtoolkit Cardiac Newborn Neuroprotective Network podcasts.apple.com/us/podcast/epi…

This is such a beautiful family sharing their expertise as a family navigating complex #CHD and the realities of life.

Special Day: In 1985, my big brother had his Fontan at Mayo when sibling support not present or any clear education. A one month chest tube hotel inspired curiosity. Today at Lurie Children's Heart Center a child life delivered a bear personally. #FontanPREP #SVONE

Para-para-paradise! 🩵 #ColdplayMadison 🇺🇸

UATW

Chris and Will sound incredible together .. I love that Chris has been singing this in lower register lately

Us Against The World | FULL PERFORMANCE 🧀 🎥Robert Krebill 🧀#ColdplayMadison