Myrona Goutaki (@mgoutaki) 's Twitter Profile
Myrona Goutaki

@mgoutaki

Paediatric respiratory epidemiology,Primary Ciliary Dyskinesia
Also tweet as @beatpcd and as @PCD_ispm
All tweets reflect my personal opinions only

ID: 2542793669

calendar_today12-05-2014 11:05:31

2,2K Tweet

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373 Takip Edilen

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

For the last session of the PCD Patient conference 2024, we will discuss the management strategies for PCD with Paolo Buonpensiero Unina Federico II and dr Michael Davis Indiana University presenting the latest advice on airway clearance techniques #PCD2024

For the last session of the PCD Patient conference 2024, we will discuss the management strategies for PCD with Paolo Buonpensiero <a href="/UninaIT/">Unina Federico II</a> and dr Michael Davis <a href="/IndianaUniv/">Indiana University</a>  presenting the latest advice on airway clearance techniques #PCD2024
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

A Q&A session on management of PCD with tips from fellow patients and questions to the medical team lead by Francisco Teniente (Spain), Fiona Copeland (UK), Hansruedi Silberschmidt (Switzerland) and dr Jobst Roehmel (Germany)

Myrona Goutaki (@mgoutaki) 's Twitter Profile Photo

Excellent ERS virtual school on scientific publishing ongoing now. All our students (and not only) are listening in- great first talk by James D Chalmers

ISPM Bern (@ispmbern) 's Twitter Profile Photo

New Professor in Climate Impact and Public Health in the Built Environment appointed – Ana M. Vicedo-Cabrera, the current head of the climate change and health team at ISPM, has been recently appointed by the Executive Board of the University of Bern as... bit.ly/4fmOcS6

New Professor in Climate Impact and Public Health in the Built Environment appointed – Ana M. Vicedo-Cabrera, the current head of the climate change and health team at ISPM, has been recently appointed by the Executive Board of the University of Bern as... bit.ly/4fmOcS6
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

We are happy to announce the new management committee members below joining BEAT-PCD (ERS CRC) WP3: Deepa Patel and Emilie Wattelier WP4: James D Chalmers WP5: Bruna Rubbo WP8: Elora Peulier-Maitre WP9: Mine Yüksel Kalyoncu

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

The latest BEAT-PCD newsletter  is available on our website beat-pcd.squarespace.com/news-and-events It contains  an update on BEAT-PCD activities, a report on our summer meeting, a summary of recent PCD research papers and upcoming events

Myrona Goutaki (@mgoutaki) 's Twitter Profile Photo

It is with heavy heart that I share the news of the death of Bernhard Rindlisbacher. Bernhard's dedication to the PCD community was unparalleled and I have been extremely lucky to had known him and worked with him pcd.ispm.ch/en/news/ .

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

Bernhardt’s passing is a great loss to the PCD community. He was an active and passionate advocate, always generous in sharing his experiences to support others. He will be deeply missed.

Myrona Goutaki (@mgoutaki) 's Twitter Profile Photo

Probably the most accurate point to keep in mind from the whole ERN-LUNG PCD meeting these days, coming from Amjad Horani: "there is no mild and severe PCD, all PCD is severe."

Probably the most accurate point  to keep in mind from the whole <a href="/ErnLung/">ERN-LUNG</a> PCD meeting these days, coming from <a href="/horaniLab/">Amjad Horani</a>: "there is no mild and severe PCD, all PCD is severe."
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

We are pleased to announce the publication of a new article exploring the fertility experiences of people with Primary Ciliary Dyskinesia (PCD) and their family caregivers: ‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: onlinelibrary.wiley.com/doi/10.1111/he… ISPM Bern Myrona Goutaki

Myrona Goutaki (@mgoutaki) 's Twitter Profile Photo

You may find lay summaries of this and all our publications on the Living with PCD study website in English, French, German, Spanish, and Italian pcd.ispm.ch/en/publication…

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

In collaboration with European Lung Foundation , EMBARC is launching a multilingual survey to explore real-life experiences of people with bronchiectasis focusing on often overlooked areas of care. Available in 8 languages. Get involved & repost! europeanlung.org/en/get-involve…