Lydia Makaroff (@lydiamakaroff) 's Twitter Profile
Lydia Makaroff

@lydiamakaroff

she/her. @BladderCancerUK CEO. @WorldBladderCan president. @EauPatient board. @elimin8schisto @myESMO @ASCO @AACR member. 🇺🇦🇪🇺🇧🇪🇬🇧🇦🇺🏳️‍🌈

ID: 14857473

linkhttps://linktr.ee/lydia.makaroff calendar_today21-05-2008 15:04:12

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Adrian Liston (@labliston) 's Twitter Profile Photo

I'm considering writing a piece of #ImmunologyFutures at ICB - the journal on interviewing staff and students. What are your go-to questions to find the right person? One of mine is to ask about a time the person made a mistake in the lab, and how it changed their practice. 1/2

Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

Honoured to be among the top influencers at #EAU2024, reflecting our collective efforts to amplify the voices of people affected by #BladderCancer. It's a testament to the work of the amazing people at Fight Bladder Cancer and the World Bladder Cancer Patient Coalition #Urology

Honoured to be among the top influencers at #EAU2024, reflecting our collective efforts to amplify the voices of people affected by #BladderCancer. It's a testament to the work of the amazing people at Fight Bladder Cancer and the World Bladder Cancer Patient Coalition #Urology
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

Lover🌺 bring out the beauty Fearless🌟mermaid's tale Red❤️ seductive lights Speak Now💜 very peri Reputation🐍 party popper Folklore🌫️oyster shell Evermore🌲 wilting bouquet 1989🎆 grace Tortured Poets Dept📜 french white Midnights 🌌 spectrolite #TSTTPD #TSTheErasTour

Lover🌺 bring out the beauty
Fearless🌟mermaid's tale
Red❤️ seductive lights
Speak Now💜 very peri
Reputation🐍 party popper
Folklore🌫️oyster shell
Evermore🌲 wilting bouquet
1989🎆 grace
Tortured Poets Dept📜 french white
Midnights 🌌 spectrolite
#TSTTPD #TSTheErasTour
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

🤓 I'm officially a Patient Experience Data Nerd! ✅ ⭐️ QoL: Quality of Life 📊 PED: Patient Experience Data 📁 PVD: Patient Value Dossier 🕘 QALY: Quality-Adjusted Life Year 📝 PROM: Patient-Reported Outcome Measure 🗣️ PREM: Patient-Reported Experience Measure 🌍 GVD:

🤓 I'm officially a Patient Experience Data Nerd! ✅
⭐️ QoL: Quality of Life 
📊 PED: Patient Experience Data 
📁 PVD: Patient Value Dossier 
🕘 QALY: Quality-Adjusted Life Year 
📝 PROM: Patient-Reported Outcome Measure 
🗣️ PREM: Patient-Reported Experience Measure
🌍 GVD:
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

🚨 We're hiring! 🚨 Fight Bladder Cancer is looking for a part-time Charity Administrator to join our team in Chinnor, Oxfordshire. Help us make a difference! 🧡 Apply by 16 June. charityjob.co.uk/jobs/fight-bla… #JobOpportunity #Hiring #CharityJobs #FightBladderCancer Fight Bladder Cancer

Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

To mark the end of #BladderCancerMonth24 🎗️, Fight Bladder Cancer exchanged blogs 📄 with the Urostomy Association to highlight the need for clear info ℹ️ so people can make informed decisions about their care 🩺. 🧡 Fight Bladder Cancer: shorturl.at/LX2ul 💙 Urostomy

To mark the end of #BladderCancerMonth24 🎗️, Fight Bladder Cancer exchanged blogs 📄 with the Urostomy Association to highlight the need for clear info ℹ️ so people can make informed decisions about their care 🩺.

🧡 Fight Bladder Cancer: shorturl.at/LX2ul
💙 Urostomy
MS Int'l Federation (@msintfederation) 's Twitter Profile Photo

📣 Save the Date! ECTRIMS Patient Community Day is happening on 20 Sep 2024, and we are excited to be supporting this event. Join us for this FREE online & onsite event filled with knowledge-sharing & support. #ECTRIMS4me #MSAwareness Learn more here ➡️ msif.org/news/2024/06/0…

📣 Save the Date! <a href="/ECTRIMS/">ECTRIMS</a>  Patient Community Day is happening on 20 Sep 2024, and we are excited to be supporting this event. Join us for this FREE online &amp; onsite event filled with knowledge-sharing &amp; support. #ECTRIMS4me #MSAwareness
Learn more here ➡️
msif.org/news/2024/06/0…
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

🗣️ Join me at the #BladderCancerForum24 on October 1-2 (face-to-face and virtual)! I'm speaking alongside experts & advocates in bladder cancer. Let's learn, share, and & shape the future of bladder cancer care together! Save your seat today👉 ow.ly/PtaR50Ta5FY

🗣️ Join me at the #BladderCancerForum24 on October 1-2 (face-to-face and virtual)! I'm speaking alongside experts &amp; advocates in bladder cancer. Let's learn, share, and &amp; shape the future of bladder cancer care together!
Save your seat today👉 ow.ly/PtaR50Ta5FY
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

To mark #UrologyAwarenessMonth, the Urostomy Association is launching a new UK Insights Survey to pinpoint the strengths and gaps in urinary diversion care. If you live in the UK and would like to take part, you find out more here: urostomyassociation.org.uk/news/insights-…

To mark #UrologyAwarenessMonth, the Urostomy Association is launching a new UK Insights Survey to pinpoint the strengths and gaps in urinary diversion care. If you live in the UK and would like to take part, you find out more here: urostomyassociation.org.uk/news/insights-…
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

🌟 So proud of MelanieJCostin for chairing the Optimal Biomarker Testing session at #EONS17 ! Biomarkers are key to: 🔍 Early detection 🎯 Personalised treatment Patient-centred care includes: 📚 Educating 🗣️ Supporting 🎤 Advocating #EONSBiomarkerGU #ESMO24

🌟 So proud of <a href="/MelanieJCostin/">MelanieJCostin</a> for chairing the Optimal Biomarker Testing session at #EONS17 !

Biomarkers are key to:
🔍 Early detection
🎯 Personalised treatment

Patient-centred care includes:
📚 Educating
🗣️ Supporting
🎤 Advocating
#EONSBiomarkerGU #ESMO24
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

Day 1 of #BladderCancerForum24 has started! Proud to be part of this event with MelanieJCostin , representing Fight Bladder Cancer & World Bladder Cancer Patient Coalition , 🧡. Thanks to Fiorella & Marie for insights on cost effective awareness and patient advocacy. Together, we drive change! 🌍🙌

Day 1 of #BladderCancerForum24 has started! Proud to be part of this event with <a href="/MelanieJCostin/">MelanieJCostin</a> , representing <a href="/BladderCancerUK/">Fight Bladder Cancer</a> &amp; <a href="/WorldBladderCan/">World Bladder Cancer Patient Coalition</a> , 🧡. Thanks to Fiorella &amp; Marie for insights on cost effective awareness and patient advocacy. Together, we drive change! 🌍🙌
World Bladder Cancer Patient Coalition (@worldbladdercan) 's Twitter Profile Photo

The topical networking session is in full swing at the #BladderCancerForum24! 🤝 Attendees are exchanging ideas and building bridges to enhance global bladder cancer awareness.

The topical networking session is in full swing at the #BladderCancerForum24! 🤝 Attendees are exchanging ideas and building bridges to enhance global bladder cancer awareness.
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

Day 1 of #BladderCancerForum24! So proud of Melanie for highlighting our Patient Information Booklets and the importance of reliable info from the start of a bladder cancer diagnosis. We're learning so much from our sister orgs. Collaboration is key! 🧡

Day 1 of #BladderCancerForum24! So proud of Melanie for highlighting our Patient Information Booklets and the importance of reliable info from the start of a bladder cancer diagnosis. We're learning so much from our sister orgs. Collaboration is key! 🧡
Lydia Makaroff (@lydiamakaroff) 's Twitter Profile Photo

Twas an honour & delight to to welcome everyone to the #BladderCancerForum24. I listened to Amy from Senegal share her journey, learned from Flávia of Brazil's Oncoguia charity, and had a fireside chat with the Director of World Bladder Cancer Patient Coalition reflecting on 5 years of achievements.

Twas an honour &amp; delight to to welcome everyone to the #BladderCancerForum24. I listened to Amy from Senegal share her journey, learned from Flávia of Brazil's <a href="/Oncoguia/">Oncoguia</a> charity, and had a fireside chat with the Director of <a href="/WorldBladderCan/">World Bladder Cancer Patient Coalition</a> reflecting on 5 years of achievements.