Jett Foundation (@jettfoundation) 's Twitter Profile
Jett Foundation

@jettfoundation

Empowering families. Fighting Duchenne muscular dystrophy.

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linkhttp://jettfoundation.org calendar_today28-08-2013 14:47:48

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Jett Foundation has an exciting day planned to connect with the community through a luncheon, virtual panel, awareness boxes, and more. We look forward to spreading Duchenne awareness with you all throughout the day! 🎈 jettfoundation.org/wdad

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Don’t forget to share and tag us in photos rocking your Jett WDAD spirit! 🎈Let’s see those red shirts, awareness boxes, decorations, and however else you have chosen to spread Duchenne awareness! #StrongerThanDuchenne #JettFoundationWDAD #WDAD2024

Don’t forget to share and tag us in photos rocking your Jett WDAD spirit! 🎈Let’s see those red shirts, awareness boxes, decorations, and however else you have chosen to spread Duchenne awareness!

#StrongerThanDuchenne #JettFoundationWDAD #WDAD2024
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Now is your chance to register for this evening's Raise Your Voice for Duchenne panel at 5pm ET! We will hear from a diverse group of experts with both professional and personal experiences relating to advocacy, disability rights, and more. 🗣️❤️ jettfoundation.org/wdad-panel

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Tonight at 7pm ET: Porch Nite, a support group that brings laughter, love, grief support, advice for your journey, and more to many moms in the Duchenne community. 🤍 Register: jettfoundation.org/event/9-9-24-p…

Tonight at 7pm ET: Porch Nite, a support group that brings laughter, love, grief support, advice for your journey, and more to many moms in the Duchenne community. 🤍

Register: jettfoundation.org/event/9-9-24-p…
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To close out our 2024 Family Workshop Series, we will visit Harrisburg, PA to share presentations and information from professionals in the Duchenne space. 📝 Register for free at jettfoundation.org/family-worksho….

To close out our 2024 Family Workshop Series, we will visit Harrisburg, PA to share presentations and information from professionals in the Duchenne space. 📝

Register for free at jettfoundation.org/family-worksho….
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Thank you to everyone who joined us at the first ever Camp Promise - South East! 🐷❤️ Firsts were had, memories were made, smiles were bright. We can’t wait to host many of you again next year! Read about our first camp experience in South Carolina at jettfoundation.org/blog/jett-foun….

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October 25th will bring us a Community Webinar discussion on behaviors in female carriers of Duchenne muscular dystrophy, an often overlooked piece to the puzzle. 💜 Learn about our guest speaker, Dr. Natalie Truba, and register to listen at jettfoundation.org/event/communit….

October 25th will bring us a Community Webinar discussion on behaviors in female carriers of Duchenne muscular dystrophy, an often overlooked piece to the puzzle. 💜

Learn about our guest speaker, Dr. Natalie Truba, and register to listen at jettfoundation.org/event/communit….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Registration is now OPEN for next month’s Mental Health & Wellness Resource Fair! 🧠💙 October 10th has a packed schedule of sessions and popups around gratitude, hope, yoga, sound and art therapy, and more. Learn more and register for sessions at jettfoundation.org/mental-health-….

Registration is now OPEN for next month’s Mental Health & Wellness Resource Fair! 🧠💙 October 10th has a packed schedule of sessions and popups around gratitude, hope, yoga, sound and art therapy, and more.

Learn more and register for sessions at jettfoundation.org/mental-health-….
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The Barkoskie family of Colorado celebrated the delivery of safe & accessible transportation on August 17th thanks to sponsor and community support of the Jett Giving Fund. ❤️🚘 Read about the family and their new van at jettfoundation.org/blog/colorado-….

The Barkoskie family of Colorado celebrated the delivery of safe & accessible transportation on August 17th thanks to sponsor and community support of the Jett Giving Fund. ❤️🚘

Read about the family and their new van at jettfoundation.org/blog/colorado-….
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Join us next Thursday for Carrier Conversations! Our conversations with female carriers of Duchenne are centered around self-care, resources, medical questions, and more. Register ahead at jettfoundation.org/event/9-19-24-…

Join us next Thursday for Carrier Conversations! Our conversations with female carriers of Duchenne are centered around self-care, resources, medical questions, and more.

Register ahead at jettfoundation.org/event/9-19-24-…
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We’re one month away from our first ever Camp Promise Retreat in Southern California! We can’t wait to welcome 18+ campers, along with enthusiastic volunteers, for a magical weekend at Camp Oakes in Big Bear. 🐽 Learn more and apply to join us at camppromise.org/apply.

We’re one month away from our first ever Camp Promise Retreat in Southern California! We can’t wait to welcome 18+ campers, along with enthusiastic volunteers, for a magical weekend at Camp Oakes in Big Bear. 🐽

Learn more and apply to join us at camppromise.org/apply.
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

August came to a magical close as we hosted campers at @ Camp Promise - East from the 11th-18th. 🩷🐽 Thank you to campers, volunteers, and families for helping create yet another amazing experience in Pennsylvania! Read more at jettfoundation.org/blog/jett-foun….

August came to a magical close as we hosted campers at @ Camp Promise - East from the 11th-18th. 🩷🐽 Thank you to campers, volunteers, and families for helping create yet another amazing experience in Pennsylvania!

Read more at jettfoundation.org/blog/jett-foun….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

CANCELLED: Caregiver Connextion, Jett Foundation’s monthly virtual support group for parents, family members or caregivers of females who have been diagnosed with Duchenne muscular dystrophy or are symptomatic carriers. If you need support or have any questions, please reach out.

CANCELLED: Caregiver Connextion, Jett Foundation’s monthly virtual support group for parents, family members or caregivers of females who have been diagnosed with Duchenne muscular dystrophy or are symptomatic carriers. If you need support or have any questions, please reach out.
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Register your foursome for this year’s Jett Golf Classic! 🏌️On Oct 1, we will hit the beautiful courses at Pinehills Golf Club in Plymouth to raise vital funds for families living with Duchenne muscular dystrophy. 💚 Learn more and secure your spot at jettfoundation.org/golf-classic.

Register your foursome for this year’s Jett Golf Classic! 🏌️On Oct 1, we will hit the beautiful courses at Pinehills Golf Club in Plymouth to raise vital funds for families living with Duchenne muscular dystrophy. 💚

Learn more and secure your spot at jettfoundation.org/golf-classic.
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Our next Porch Nite session will take place in one week on September 23 at 7pm ET. Please register ahead to receive the Zoom link! ❤️🕯️ jettfoundation.org/event/9-23-24-…

Our next Porch Nite session will take place in one week on September 23 at 7pm ET. Please register ahead to receive the Zoom link! ❤️🕯️

jettfoundation.org/event/9-23-24-…
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

The team at Jett Foundation can’t thank our community enough for helping spread an immense amount of awareness during this year’s World Duchenne Awareness Day! ❤️🎈 Read a blog recap of this year’s monumental WDAD at jettfoundation.org/blog/a-day-to-….

The team at Jett Foundation can’t thank our community enough for helping spread an immense amount of awareness during this year’s World Duchenne Awareness Day! ❤️🎈

Read a blog recap of this year’s monumental WDAD at jettfoundation.org/blog/a-day-to-….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

We invite all moms, aunts, and grandmothers to join us for our next Porch Nite weekend! At an airbnb, we will enjoy a pool, fire pit, hot tub, coffee bar and more while connecting and sharing about Duchenne journeys. 💛 Register now to join us in PA at jettfoundation.org/event/porch-ni….

We invite all moms, aunts, and grandmothers to join us for our next Porch Nite weekend! At an airbnb, we will enjoy a pool, fire pit, hot tub, coffee bar and more while connecting and sharing about Duchenne journeys. 💛

Register now to join us in PA at jettfoundation.org/event/porch-ni….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Next month’s Mental Health & Wellness Resource Fair will host sessions and pop-ups on hope, gratitude, yoga, expressive arts and sound therapy, and more! 🧠💙 Check out the agenda and sign up to join sessions at jettfoundation.org/mental-health-….

Next month’s Mental Health & Wellness Resource Fair will host sessions and pop-ups on hope, gratitude, yoga, expressive arts and sound therapy, and more! 🧠💙

Check out the agenda and sign up to join sessions at jettfoundation.org/mental-health-….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Today at 11am ET: Carrier Conversations! 💜 It’s not too late to join us; receive the Zoom link by registering at jettfoundation.org/event/9-19-24-….

Today at 11am ET: Carrier Conversations! 💜

It’s not too late to join us; receive the Zoom link by registering at jettfoundation.org/event/9-19-24-….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

We are excited to hear from DJ Kimble and Jonathon Truwit next Thursday on myths surrounding tracheostomies. 💻💙 Tune in: jettfoundation.org/event/communit….

We are excited to hear from DJ Kimble and Jonathon Truwit next Thursday on myths surrounding tracheostomies. 💻💙

Tune in: jettfoundation.org/event/communit….