HPS Network (@hpsnetwork) 's Twitter Profile
HPS Network

@hpsnetwork

Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis

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linkhttp://www.hpsnetwork.org calendar_today11-05-2011 22:03:29

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HPS Network
@hpsnetwork

21 days ago

"Hello, September! 🍂 Embrace the new month with fresh energy and exciting adventures. Here's to new beginnings and unforgettable moments!" Don't forget to check your email for September events! #curehps #hermanskypudlaksyndrome #raredisease #ourstory #goodvibes #awareness

"Hello, September! 🍂 Embrace the new month with fresh energy and exciting adventures. Here's to new beginnings and unforgettable moments!" Don't forget to check your email for September events! #curehps #hermanskypudlaksyndrome #raredisease #ourstory #goodvibes #awareness