"Nothing for us without us." Genuine inclusion of persons with disabilities is vital if policies impacting their health and wellbeing are to be of genuine value. At WHO/Europe we take this mission very seriously - advocating with our Member States to strengthen

For #InternationalDayOfPersonswithDisabilities EMEA joins over 100 organisations to urge EU Commissioner Lahbib to “keep the momentum” on disability rights European Disability Forum statement- europeanmealliance.org/news-Q42024-00… #MEawareness #DisabilityRights #mecfs

Are you 16–35 and living with a disability in Europe? Our Youth Committee wants to hear from you! Take this survey to share your experience on: 🏠 Housing 🎓 Education 💼 Employment 🗳️ Political and social participation Your voice can help shape better EU policies!

Young EMERG workshop 26-27 May 2025 youngemerg.com/yemerg05.shtml We have also announced Young EMERG workshop 2026 - now full two-day workshop youngemerg.com/yemerg06.shtml The future for research into ME #mecfs #research Young European ME Research Group European ME Research Group (EMERG)

From EMERG member Professor David Price et al Identification of soluble biomarkers that associate with distinct manifestations of long COVID nature.com/articles/s4159… #mecfs #LongCovid #research

#InternationalMEawarenessDay 𝘿𝙤 𝙣𝙤𝙩 𝙙𝙞𝙨𝙢𝙞𝙨𝙨 𝙢𝙮𝙖𝙡𝙜𝙞𝙘 𝙚𝙣𝙘𝙚𝙥𝙝𝙖𝙡𝙤𝙢𝙮𝙚𝙡𝙞𝙩𝙞𝙨 (𝙈𝙀) The science does not Listen to the voices of patients Share the video #mecfs #MedEd #MEAwareness youtube.com/shorts/16vBtnE… via YouTube

#InternationalMEawarenessDay There is a solution for ME Launch national/𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 strategies of biomedical research to improve patient outcomes/develop treatments for ME Share the video #mecfs #MedEd #MEAwareness youtube.com/shorts/Mb_n2zS… via YouTube

𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐌𝐄 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐃𝐚𝐲 On #InternationalMEawarenessDay EMEA urges #EU to work with EMEA & initiate a pan-European effort to resolve decades of issues with research/treatment of #mecfs europeanmealliance.org/emea-meawarene… #InternationalMEawarenessDay #MedEd

On #InternationalMEawarenessDay the European ME Alliance member societies are extremely grateful to Dr. Kluge Hans Kluge for his support & meeting with us in Oct 2024 to discuss future collaboration to address this devastating illness x.com/hans_kluge/sta… #mecfs #MedEd

Dutch Television and Radio Highlight ME europeanmealliance.org/news-Q22025-00… #mecfs

EMEA are members of European Federation of Neurological Associations (EFNA) The latest episode of EFNA #BrainHealthMatters podcast the invisible battles faced by people living with neurological conditions are explored - EMEA contributed this - linkedin.com/posts/efna_bra… #mecfs

In May the European ME Alliance was accepted as a full member of the European Patients' Forum (European Patients' Forum), the leading umbrella organisation representing patients across Europe europeanmealliance.org/news-Q22025-00… #mecfs

Switzerland Advances National Strategy on ME and Long Covid europeanmealliance.org/news-Q32025-00… #mecfs #Longcovid

ME is a too often ignored humanitarian crisis in many European countries Today is #WorldHumanitarianDay – EMEA has called for EU to: -Use proven EU mechanisms -Fund & formalise existing efforts -Treat ME/CFS as a legitimate public health challenge europeanmealliance.org/documents/eupo… #mecfs