@ERN_RND 🧠 (@ern_rnd) 's Twitter Profile
@ERN_RND 🧠

@ern_rnd

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: bit.ly/33mMY4C

ID: 995975391247568896

linkhttps://www.ern-rnd.eu/ calendar_today14-05-2018 10:33:32

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ERN RARE LIVER (@ern_rare_liver) 's Twitter Profile Photo

🆕 New Patient Leaflets Available! We now have leaflets about Primary sclerosing cholangitis (PSC) for Children and Teens in Polish. 👉 Check it out here: lnkd.in/enfwfz3N #PatientCare #HealthAwareness #MedicalInfo #PatientSupport #HealthcareResources #PolishResources

@ERN_RND 🧠 (@ern_rnd) 's Twitter Profile Photo

"Knowledge travels, not the patient" - this is possible through European Reference Centers #ERNs! So, what exactly do patients and clinics gain from ERNs? Find out more about #ERNs in this interview with our coordinator: ern-rnd.eu/interview-de-n…

"Knowledge travels, not the patient" - this is possible through European Reference Centers #ERNs!
So, what exactly do patients and clinics gain from ERNs? Find out more about #ERNs in this interview with our coordinator: ern-rnd.eu/interview-de-n…
EpiCARE (@epicare_ern) 's Twitter Profile Photo

Explore our library of recorded webinars. 🔎 Use our search tool to find exactly what you’re looking for—just type in a title or keyword and start learning: epi-care.eu/past-epicare-w…

Explore our library of recorded webinars. 🔎 Use our search tool to find exactly what you’re looking for—just type in a title or keyword and start learning: epi-care.eu/past-epicare-w…
MDS (@movedisorder) 's Twitter Profile Photo

People with Parkinson’s disease can be affected by a wide range of neuropsychiatric issues. Learn how to provide optimal care in this on-demand module. loom.ly/o-45wO4

People with Parkinson’s disease can be affected by a wide range of neuropsychiatric issues. Learn how to provide optimal care in this on-demand module. loom.ly/o-45wO4
European Academy of Neurology (@eaneurology) 's Twitter Profile Photo

📢 #EANPOTM March Can a diabetes drug slow Parkinson’s? A phase 3 trial tested exenatide, a GLP-1 receptor agonist, for its potential disease-modifying effects in Parkinson’s. ➡️Despite promising preclinical data, no clinical benefit. 🔗Find more here: ow.ly/X5sv50Vm2jV

ERDERA (@erdera_org) 's Twitter Profile Photo

📣 Event Alert! On 10–11 April, key ERDERA partners will take the stage at the Polish Presidency of the Council of the EU Conference: Towards an EU Action Plan on Rare Diseases: National Plans and European Cooperation. 🔗View the programme and register: loom.ly/pD_Wy4U

📣 Event Alert! On 10–11 April, key ERDERA partners will take the stage at the Polish Presidency of the Council of the EU Conference: Towards an EU Action Plan on Rare Diseases: National Plans and European Cooperation. 🔗View the programme and register: loom.ly/pD_Wy4U
Rare Disease Clinical Trial Network, Ireland (@rare_trial) 's Twitter Profile Photo

📑 Clinical Trial Identification Project 📑 Ms Sarah Forde (RDCTN) will present an overview of the Clinical Trial Identification Project, a vital initiative for improving trial accessibility. #ClinicalTrialAccess #RareDiseaseTrials 📅 Register here: eventbrite.ie/e/rare-disease…

📑 Clinical Trial Identification Project 📑
Ms Sarah Forde (RDCTN) will present an overview of the Clinical Trial Identification Project, a vital initiative for improving trial accessibility. #ClinicalTrialAccess #RareDiseaseTrials 📅 Register here: eventbrite.ie/e/rare-disease…
EPNS (@epnsnews) 's Twitter Profile Photo

Next EPNS FREE EdNucational webinar - Wed 9 April 5pm CET - Registration now open! -us02web.zoom.us/webinar/regist…

Next EPNS FREE EdNucational webinar - Wed 9 April 5pm CET - Registration now open! -us02web.zoom.us/webinar/regist…
European Society of Human Genetics (ESHG) (@eshgsociety) 's Twitter Profile Photo

The #eshg2025 invites you to submit a Breaking Abstract for inclusion in the "Late Breaking Abstracts" Concurrent Session on Monday, May 26, 2025, 10:30-12:00 hrs CEST! Deadline: April 9, 2025, 23:59 CEST. For more information visit our website: 2025.eshg.org/abstracts/brea…

MDS (@movedisorder) 's Twitter Profile Photo

New Moving Along issue: Phenomenology of tremor, the importance of GBA1 genetic testing and counseling in PD, and advancing EMST with machine learning, and more: loom.ly/9nA2oMM

EPNS (@epnsnews) 's Twitter Profile Photo

EPNS/EAN FREE JOINT Educational webinar - Wed 14 May 5pm CET Registration now open! - us02web.zoom.us/webinar/regist…

EPNS/EAN FREE JOINT Educational webinar - Wed 14 May 5pm CET Registration now open! -
us02web.zoom.us/webinar/regist…
@ERN_RND 🧠 (@ern_rnd) 's Twitter Profile Photo

What is a Patient Journey and how do you develop one? Our patient advocate Lori Renna Linton will give an insight on this at the EESC Conference "Towards an EU Action Plan on Rare Diseases" on April 10, 12:00 CEST. Register here: t1p.de/b165p

What is a Patient Journey and how do you develop  one? Our patient advocate Lori Renna Linton will give an insight on  this at the EESC Conference "Towards an EU Action Plan on Rare Diseases"  on April 10, 12:00 CEST. Register here: t1p.de/b165p
@ERN_RND 🧠 (@ern_rnd) 's Twitter Profile Photo

Some impressions from today's film session at the neuropaedriatric department of the University Hospital Tübingen. Curious about what we did there? Then check back with us on Monday to find out!

Some impressions from  today's film session at the neuropaedriatric department of the  University Hospital Tübingen. Curious about what we did there? Then  check back with us on Monday to find out!