📣 Live update from #BBSConf2025 Paula McGrath, Deputy CEO and Mark Baxter from Retina UK and shared how peer support can empower and connect people, creating a safe space to exchange tips, stories, and advice.

📣 Live update from #BBSConf2025 Dr. Blumer is a Clinical Psychologist at St George’s Hospital, specialising in neurological and neurodevelopmental conditions. She and Dr Emma McGibbon spoke about the cognitive, behavioural and social presentations in children and young people.

📣 Live update from #BBSConf2025 All the way from Germany, researchers Dr Emilia Kieckhöfer, Julia Günzler, Jannis von Spreckelsen and Dr Viola Kretschmer delivered an accessible and interactive scientific talk designed for those living with #BardetBiedlSyndrome.

📣 Live update from #BBSConf2025 Suzy is a Senior Habilitation Specialist and she provided insight into what parents should expect from a habilitation service and explored the unique mobility challenges faced by children with #BardetBiedlSyndrome as they grow.

📣 Live update from #BBSConf2025 All the way from North Caroline, Emily Bartell shared with us her experience of living with BBS, how a great support network is important, as well as some inspiring and motivating advice for those living with VI.

📣 Live update from #BBSConf2025 Sarah Flack gave key diet advice for those living with #BardetBiedlSyndrome, including portion control, and hidden calories!

We urge MPs to stand strong and vote against the Universal Credit and Personal Independence Payment bill on Tuesday. No blind or partially sighted person, now or in the future, should be pushed into poverty or lose out on essential support to live independently. 4/4

🌟 Mum Dianne Garrett shares her story of raising her son with #BardetBiedlSyndrome in Exceptional Times. 💙 Stories of autism, rare disease, & a Cincinnati barber creating joyful moments for kids with disabilities. Read it here: shorturl.at/gEFJl Thanks @ParentCenterHub

📣 Views wanted on SEN units in mainstream schools in England 📣  The Department for Education is asking for parent carers’ views on Special Educational Needs (SEN) units and resource bases in mainstream schools. The survey is open until Wednesday 13 August and takes around 20

Have you heard of Getting Back Out There? The new project from RNIB Scotland is designed to support blind and partially sighted people in rural areas. Our allan russell hears about the importance of such support from Jenny, who lives on Isle of Arran. audioboom.com/posts/8753335-…