Here's our amazing son, 11 year old Max, helping to raise awareness of devastating batten disease at Great Ormond Street yesterday. Today is batten disease awareness day. There's no cure & only 1 effective treatment for a small section of children #battenday2022 BDFA

Good Morning from a wet n windy Glasgow on International Batten Disease Awareness Day 🧡 #battenday2022 #bdfa BDFA Nicole Rich #Glasgow #battendisease

The first of our stories for #BattenDay2022 BDFA Peer Befriending coordinator Mimi Petty talks about her precious son Bertie, who passed away from CLN1 #battendisease bdfa-uk.org.uk/the-first-of-o…

Marta is mum to four-year-old triplets Lena, Nina and Pola. Lena and Nina were recently diagnosed with CLN2 #battendisease, accessing #brineura. Pola is a carrier. "We have a house full of laughter and tears," says Marta #BattenDay2022 #battenstories bdfa-uk.org.uk/nina-and-lenas…

Max doing some more to raise awareness today of batten disease with his brother Felix and his friends William and Freya at his Bristol ConductiveEducation session today. There's no cure & only 1 effective treatment for a small section of children #battenday2022 BDFA

Its Batten Disease Awareness Day. Vital we continue to raise awareness of this disease + campaign for greater research into potential therapies to support those affected. Grateful for important work @Olliebobsarmy @battendiseaseuk continue to do. More info:bdfa-uk.org.uk

Only 24hrs left to make a difference in this weeks charts!

Come join us on Saturday at 11am (BST - UK) for a special #charitystream belated to celebrate #battensday22 #battendiseaseawareness day . Donate and support. Gonna get 13 dubs in 13 hours...... 🤪 tiltify.com/@batten-royale…

13 WINS IN 13 HOURS FORTNITE CHARITY STREAM TO DEFEAT BATTENS DISEASE - LETS GOOOOOOO twitch.tv/batten_royale

Today, the Supreme Court not only reversed nearly 50 years of precedent, it relegated the most intensely personal decision someone can make to the whims of politicians and ideologues—attacking the essential freedoms of millions of Americans.

TIMMMMBEEEERRR

Damnnn this is not bad #craiyon

The extraordinary moment when the great humanitarian & trauma surgeon David Nott met the Queen, shortly after his return from Aleppo.

The Queen died peacefully at Balmoral this afternoon. The King and The Queen Consort will remain at Balmoral this evening and will return to London tomorrow.

War Diary Day 198 Russia is losing the war faster than anyone expected

Why won't UK give paid leave to parents caring for ill children? mol.im/a/11848097 via Mail Online