The Life Raft Group (@liferaftgroup) 's Twitter Profile
The Life Raft Group

@liferaftgroup

Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

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linkhttps://www.liferaftgroup.org/donate calendar_today06-11-2008 19:32:02

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The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Don’t miss these #GISTeducation webinars! Register today for 'Treatment for GIST in the Liver', bit.ly/LocoregionalTh…, and 'IDRX-42 Trial Design', bit.ly/IDRX42Webinar #ThrivingTogether #ClinicalTrials

Don’t miss these #GISTeducation webinars! Register today for 'Treatment for GIST in the Liver', bit.ly/LocoregionalTh…, and 'IDRX-42 Trial Design', bit.ly/IDRX42Webinar #ThrivingTogether #ClinicalTrials
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

#SDHdeficientGIST affects a small portion of GIST patients but these patients are largely children & young adults. Check your #SDH101 knowledge & learn more about SDH-def GIST from Dr. Andrew Blakely: bit.ly/SDH101-LifeFest #childhoodcancerawarenessmonth #gisteducation

The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

In one hour Dr. Kim of Mount Sinai Medical Center will be presenting “Locoregional Therapies for Treatment of GIST in the Liver”. Register now: bit.ly/LocoregionalTh… #GISTeducation #ThrivingTogether

In one hour Dr. Kim of Mount Sinai Medical Center will be presenting “Locoregional Therapies for Treatment of GIST in the Liver”. Register now: bit.ly/LocoregionalTh… #GISTeducation #ThrivingTogether
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

September is #DesmoidTumorAwarenessMonth. Studies suggest that desmoid & GIST may be related. Learn more in our webinar featuring Drs. Bialick and @jtrentmdphd of Sylvester Comprehensive Cancer Center bit.ly/GISTandDesmoid #GIST #ThrivingTogether #DesmoidAwareness

The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Ripretinib, an approved for adv. GIST for 4L treatment, is being investigated as a second-line option compared to sunitinib for certain, specific GIST mutation types. Learn about eligibility: bit.ly/INSIGHT-Study-… #clinicaltrialswednesday #ThrivingTogether #GIST Deciphera Pharma

The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

There's still time to register for these in-person GIST Days of Learning in Ohio & Calgary! GDOL Ohio 9/14, GDOL Calgary 9/28. bit.ly/GDOLohio bit.ly/GDOL-Calgary #GISTeducation #ThrivingTogether #GISTDayOfLearning

There's still time to register for these in-person GIST Days of Learning in Ohio & Calgary! GDOL Ohio 9/14, GDOL Calgary 9/28. bit.ly/GDOLohio  bit.ly/GDOL-Calgary #GISTeducation #ThrivingTogether #GISTDayOfLearning
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Dr. Edward Kim presented various therapies for treating GIST when it metastasizes to the liver. Recording is now posted: bit.ly/LocoregionalTh… #GISTeducation #ThrivingTogether #liver Mount Sinai Health System

Dr. Edward Kim presented various therapies for treating GIST when it metastasizes to the liver. Recording is now posted: bit.ly/LocoregionalTh… #GISTeducation #ThrivingTogether #liver <a href="/MountSinaiNYC/">Mount Sinai Health System</a>
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Becky has been battling SDH-deficient GIST for over two decades & shares her story. #ChildhoodCancerAwarenessMonth #SDHdeficientGIST #ThrivingTogether

Pawel Sobczuk (@pawel_sobczuk) 's Twitter Profile Photo

Olvermatinib in pts with SDH-deficient #GIST 🔸mPFS 22months 🔸mPFS from historical data for sunitinib or regorafenib 5-6m #sarcoma #ESMO24 #ESMOAmbassadors ESMO - Eur. Oncology

Olvermatinib in pts with SDH-deficient #GIST 
🔸mPFS 22months
🔸mPFS from historical data for sunitinib or regorafenib 5-6m
#sarcoma #ESMO24 #ESMOAmbassadors <a href="/myESMO/">ESMO - Eur. Oncology</a>
Piotr Rutkowski (@rutkowskip1972) 's Twitter Profile Photo

First data presented of our study Axitinib plus avelumab in patients with unresectable/metastatic gastrointestinal stromal tumor (GIST) after failure of standard therapy: Single-arm phase II study (AXAGIST) thank you katarzyna kozak Narodowy Instytut Onkologii, Warszawa SPAGN

First data presented of our study Axitinib plus avelumab in patients with unresectable/metastatic gastrointestinal stromal tumor (GIST) after failure of standard therapy: Single-arm phase II study (AXAGIST) thank you <a href="/katarzynakozak9/">katarzyna kozak</a> <a href="/NIO_PIB/">Narodowy Instytut Onkologii, Warszawa</a> <a href="/sarcomapatients/">SPAGN</a>
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

We’re excited to participate in #ESMO2024! Our poster, Real-world efficacy of imatinib in advanced GIST: The LRG Registry, features contributions from Sara Rothchild, Denisse Evans, Jerry Call, and in collaboration with Dr. Gim Gahyun and Dr. Adrianne Victor from URMC. #GIST

We’re excited to participate in #ESMO2024! Our poster, Real-world efficacy of imatinib in advanced GIST: The LRG Registry, features contributions from Sara Rothchild, Denisse Evans, Jerry Call, and in collaboration with Dr. Gim Gahyun and Dr. Adrianne Victor from URMC. #GIST
Herbert Loong, MBBS, FASCO (@herbloong) 's Twitter Profile Photo

The final speaker of #sarcoma #ed session is #GIST #guru 💊 Sebastian Bauer taking us through the earlier and contemporary clinical trials of #primary GISTs and strategies to deal with #diseaseresistance. Lessons learned from failed early #nilotinib trial before attempting to

The final speaker of #sarcoma #ed session is #GIST #guru 💊 <a href="/seppobauer/">Sebastian Bauer</a> taking us through the earlier and contemporary clinical trials of #primary GISTs and strategies to deal with #diseaseresistance. Lessons learned from failed early #nilotinib trial before attempting to
César Serrano García (@drcesarcoma) 's Twitter Profile Photo

📉LENVAGIST R-P2 trial in met #GIST presented by Jean-Yves Blay -Heavily pretreated population (>3 lines 50%) -mPFS 2.8mo vs 1 mo placebo -1 partial response (5%) ✍️MKIs with anti-KIT activity have (almost) always some degree of activity #ESMO24 #ESMOAmbassadors

📉LENVAGIST R-P2 trial in met #GIST presented by <a href="/jeanyvesblay/">Jean-Yves Blay</a> 

-Heavily pretreated population (&gt;3 lines 50%)
-mPFS 2.8mo vs 1 mo placebo
-1 partial response (5%)

✍️MKIs with anti-KIT activity have (almost) always some degree of activity

#ESMO24 #ESMOAmbassadors
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

On October 7th at 1PM ET, Dr. Suzanne George of @danafarber will discuss the IDRX StrateGIST 1 Study for the GIST patient community. Register now and submit your questions ahead of time: bit.ly/IDRX42Webinar

On October 7th at 1PM ET, Dr. Suzanne George of @danafarber  will discuss the IDRX StrateGIST 1 Study for the GIST patient community. Register now and submit your questions ahead of time: bit.ly/IDRX42Webinar
The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Our final in-person U.S. GIST Day of Learning for 2024 was last Saturday at Ohio State University w/GIST experts Drs. Tinoco, Iwenofu, Liebner & Grignol presenting. Check out upcoming educational events at: bit.ly/LRGEvents2024 Gabriel Tinoco Valerie Grignol The James

The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

GIST & desmoid tumors impact quality of life in different ways. Speak to a specialist about the best treatment options for the best outcomes possible. #DesmoidTumorAwarenessMonth Link to webinar recording bit.ly/GISTanddesmoid

The Life Raft Group (@liferaftgroup) 's Twitter Profile Photo

Starting a new treatment course can be daunting. Be sure to review all your options, including clinical trials, before committing. #ClinicalTrialWednesday