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CHAMP1

🎿 Look out, world! Ou CHAMP1ON Otilia, from Italy 🇮🇹, has officially conquered the slopes after just 3 days of learning to ski! 🏔️🌟 Determined as always, she's carving her own path to success. ❄️🎉 #SkiingQueen #Determination 🚀🤩 #CHAMP1 #CHAMP1Research #FightLikeaCHAMP1ON

🎿 Look out, world! Ou CHAMP1ON Otilia, from Italy 🇮🇹, has officially conquered the slopes after just 3 days of learning to ski! 🏔️🌟 Determined as always, she's carving her own path to success. ❄️🎉 #SkiingQueen #Determination 🚀🤩 #CHAMP1 #CHAMP1Research #FightLikeaCHAMP1ON

🔬✨ Our CHAMP1 Scientists and Researchers Quarterly Call was a resounding success! 🌟 It was an invaluable opportunity for new scientists to connect with other groups and for everyone to share their latest progress and updates. 🗓️💼 #CHAMP1Research #ConferencePrep 🚀🔍

Happy birthday to our CHAMP1ON Sienna who turns 5 today! 🎂🥳🎉 We hope you have an amazing day.

Happy Birthday to our CHAMP1ON Aila who turns 5 today 🇩🇪 Herzlichen Glückwunsch liebe Aila

On April 29th, our founder, Jeff D'Angelo, attended the Rare Drug Symposium and participate in the panel "The Critical Need for Patient-Led Data Initiatives: Does Size Matter?", he talked about our partnership with Rare X @Rare_x_ @globalgenes #CHAMP1 #RDDS #CareAboutRare

Big shoutout to @kleiderboerse_osterwald for their incredible generosity! Thank you for donating all sales to the CHAMP1 Research Foundation. Your support means the world to kids like Thorvi and all those affected by CHAMP1. #CHAMP1Research #CommunitySupport #kleiderbörse

Today Jojo turns 9 years old! Happy Birthday Jojo! 🎂 #birthday #CHAMP1ON #fightlikeaCHAMP1ON #CHAMP1Research

Thrilled to be at this massive #ESHG2024 conference in Berlin with over 3200 speakers, checking out the newest CHAMP1 poster alongside 2,665 others. #CHAMP1 #CHAMP1ResearchFoundation #CHAMP1ResearchFoundationEurope

This week Scott of CHAMP1 UK and Daniele of CHAMP1 Research Foundation Europe have the privilege of attending the Eurordis School on Medicines Research & Development, Scientific Innovation & Translational Research in Barcelona, Spain. #CHAMP1UK #CHAMP1ResearchFoundationEurope

👩🏻‍🔬GRANT FOR RESEARCHERS 👨🏻‍🔬 The Researcher Connection Program is intended to assist with travel expenses for rare disease researchers and doctoral students in the rare disease field. #rare #CHAMP1 #Research #grantresearch Researcheres please apply here: upliftingathletes.org/researcher-con…

Dear CHAMP1 Families If you are unable to attend due to financial reasons, The CHAMP1 Research Foundation has a limited number of travel grants available to enable you to attend. Please complete the below application to be considered: champ1foundation.org/travel-grant/

The CHAMP1 Family & Scientific Engagement Conference will beheld October 24th-27th 2024. This will be at the Rosen Centre in Orlando, Florida 🇺🇸 This will be the largest gathering of CHAMP1 families and professionals to date. champ1foundation.org/conference

Lucca was at the climbing space for the first time and showed so much bravery! 💪 Children affected by CHAMP1 can struggle with strength exercises due to hypotonia, but our 5-year-old champion from Brazil was amazing! 🌟 Keep climbing, Lucca! 🇧🇷🧗‍♂️ #CHAMP1 #wednesdaywarriors

Our CHAMP1ON Lori, 3 years old, enjoying her hippotherapy session! 🐴💪 Hippotherapy is incredibly important for our CHAMP1ONS because it helps with improving balance, coordination, and muscle strength. #CHAMP1ON #Hippotherapy #TherapyGoals #Strength #Inspiration

The Olympic Games have always been a symbol of strength, determination, just like our CHAMP1ONS! Let's cheer for all the athletes in the Olympic Games and for our own amazing CHAMP1ONS who inspire us every day! 🏅💪 #CHAMP1 #OlympicSpirit #Inspiration #Determination #Champions

We had an amazing meeting this morning with scientists from all over the world sharing their progress on CHAMP1 Research, sharing their unpublished findings to accelerate the collective understanding of CHAMP1. . #CHAMP1 #ScienceCollaboration #Research #CHAMP1Conference2024