"Respite is not a luxury, it is a necessity and it gives family carers a chance to rest and give us a well-earned break... It is also the difference between parents coping with caring 24/7 and preventing carer burnout." Moira Skelly speaking at The State of Caring 2024 launch.

The ECFS has published 4 papers, updating standards for the care of people with CF. Covering everything related to living with and caring for people CF they are a great source of information for all CF teams. More information on: ecfs.eu/ecfs-standards…

The headline doesn’t do the story justice! What are the design flaws you say? Consultant discovers that in the worlds most expensive hospital some of the consultant rooms have no wheelchair accessibility. That’s right no access for children wheelchair users in a €2.2bn

Tess Finch-Lees: We’re drowning in a wave of Covid, but hospitals aren’t even insisting on masks buff.ly/4clXc9B

👇There Are Tens of Thousands of #Disabled Irish Children & Young Adults Suffering Life Limiting Outcomes on Chronic Waiting Lists - Now Is The Time For Accountability - Exactly Who - What Managers in ⁦HSE Ireland⁩ & ⁦Children's Health Ireland⁩ ⁦Department of Health⁩ Are Responsible?

Anyone get the invite to this event held today?

Very upsetting watching the documentary #FightToFly on Channel 4 Here we see one story where the presenter has to drag himself along the floor of a brand new aircraft because their is no transport seat onboard to allow him the dignity of the bathroom. #discrimination

Well done Clare great game

For anyone who missed my interview this evening, please listen and share.💔 It's not an easy listen, but it's vital tax payers know the contempt the HSE & government officials have for chronically ill patients. rte.ie/radio/radio1/c…

Kellie taking her medal to the local care home next to the Olympic village this morning 🥰 #TeamIreland | #Paris2024

The first Irish female to EVER qualify for an Olympic sprint final 🔥 Rhasidat Adeleke ✨ #TeamIreland | #Paris2024

Golden Farewell! 🥇🥇 Kellie Harrington takes gold in Paris after her Tokyo 2020 triumph. As the only Irish woman athlete to win two golds, she retires at the pinnacle of Olympia. You’re a true inspiration, Kellie. Enjoy your well-deserved moment! #Paris2024 🎨 𝐌𝐮𝐯𝐞𝐫

As We Approach #Budget2025 & Final Countdown to General Election - I’m Appealing Directly to Taoiseach ⁦Simon Harris TD⁩ to Please Name The Date for Full Ratification of #UNCRPD - You Can Do It Taoiseach - Is Féidir Leat -A Fundamental Human Rights Approach for #Disability✊

My Response to #Budget2025 - Whilst I Acknowledge The Small Meagre Increases to #Carers & #Disability Allowances & Tax Reliefs - They Do NOT Reflect Crisis of Poverty & Unmet Need in Ireland - #Disability Allowance & #Carers Allowance Should Be Non-Means Tested Universal Payments

The contentious €2.3 billion National Children’s Hospital is in the wrong location, a leading paediatrician said yesterday. Dr Suzanne Crowe said the facility, being built at the St. James’s Hospital campus, should have been co-located on a greenfield site with the national

Mick Caul Letter 2015 signed by leading clinicians in neonatal care. “Co location with a physically linked maternity hospital is in our expert opinion, non negotiable.” Children’s lives will be put at risk transporting them around the city. @DonnellyStephen Simon Harris TD

#cysticfibrosis #tlt4cf see you there!!

Please Read & Share - My Analysis of #Disability & #Caring in #GE24 - Especially In Light Of Taoiseach’s Interaction With #CharlotteFallon - Opinion: This election exposed disability services for what they are — the scandal of our age (via TheJournal.ie) jrnl.ie/6560940

Final construction date for new National Children’s Hospital may be delayed again buff.ly/Z2Llgtd