What a great event avoiding the typical needle in the haystack inefficiencies! Indeed great conversations!

Pain: the common factor in touching music and health entrepreneurship linkedin.com/pulse/pain-com… via LinkedIn

🌟 Exciting news! 🌟 Our phase 3 prospective study for absence seizures is featured in the Epilepsia journal Special Issue! 🎉📚 So thankful about the world's leading journal of original scientific research and commentary in epileptology. 🌍💡 🔗 hubs.la/Q02gzZz90

On the occasion of the #RareDiseasesDay, join us to explore what can be done to improve the lives of people living with a rare disease! 📅 29 February 2024 🕙 10:00-14:00 📍 Brussels & Online Discover the programme & register now 👉 braincouncil.eu/event/towards-…

The main purpose of #RareDiseasesDay is to raise awareness about rare diseases and their impact on the lives of those affected. Discover the programme & register now 👉 braincouncil.eu/event/towards-…

Super powerful testimony of Tim Buckinx at European Brain Council ‘Towards a Rare Brain Disease Ecosystem’ Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families #RareDiseaseAwareness

BRAINTEASER S. Kympouropoulos Magda EFPIA Frédéric Destrebecq We turn the focus to patients and caregiver priorities, with a personal testimony from Tim Buckinx (wrepihunter) and interventions from Matt Bolz-Johnson (EURORDIS-Rare Diseases Europe) on #MentalHealth and rare conditions and Orla Galvin (@EUneurology) on rare #neurology.

BRAINTEASER S. Kympouropoulos Magda EFPIA Frédéric Destrebecq wrepihunter EURORDIS-Rare Diseases Europe @EUneurology Tim Buckinx Alexion Amylyx Ataxia UK Bham Children's Hosp 💙 ScuolaSantAnna Vinciane Quoidbach It’s a wrap! After an open discussion on unmet needs engaging Michelangelo Mancuso (European Academy of Neurology), Anna Jansen (EPNS) and the audience, the concluding remarks from Frédéric Destrebecq bring the event on a rare brain disease ecosystem to a close.

With BBC StoryWorks 📹 & MedTech Europe 🧠 🇪🇺 I share my excitement re #MedTech, its possibilities, the need for managing it well, & how it can and already is leading to improving people’s quality of life 👇🏻. linkedin.com/feed/update/ur… Examples of people and company’s leading when

Excited to join Aparito Health for their upcoming webinar where our CEO Tim Buckinx will share insights and perspectives from our work at wrepihunter ! #dailylifeimpact #epilepsy

It’s so important for companies to understand why people with epilepsy need specific considerations in the workplace. Tragic losses like these should never happen. With a little knowledge, this would’ve been avoided. Make sure you don’t fail your employees epilepsy.org.uk/training

📅Today is International Phenylketonuria Day! EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria" #PKUDAY2024 #adultPKUawareness 🔍Read the report here: bit.ly/4eL8aqv

Happy to participate in the great conversations for this important and insightful work!

Big audience for #EEC2024 session on genetic testing. @SarahWeckhuysen very explicitly speaking about the need to do karyotyping if r(20) syndrome is suspected as it is frequently mosaic. #epilepsy #diagnostics #karyotype is still important!

Extremely excited to be speaking at the #Brain #Innovation Days about the pioneering wrepihunter DTx strategy using auditory neuromodulation. Sound as the medicine for brain disorders! 🗓️ 13-14 Nov. 2024 📌 Brussels, Belgium #BIDays Register now: 👉 braininnovationdays.eu

🌍 On November 13-14, join us in Brussels for the #BIDays!✨ Speakers from all over Europe & beyond will cover all kinds of exciting topics within the general theme "Navigating the Brain Across a Lifetime". Check out the programme and register now 👉 braininnovationdays.eu/programme-2024/

How can breathing, sound & music can promote #BrainHealth and combat brain disorders? 🎶🧠 The #BIDays attendees experience firsthand the effects of breathing, sound and music in their bodies.

What a great first day already!

Rhys Thomas's poster attracted a lot of visitors yesterday. 🙏for sparking conversations & new interest in r(20) #epilepsy. Together with Tim Buckinx,Trustee, Margaret, r(20) family member rep Ring20 USA & Kentaro Tokumoto (SAB member fm 🇯🇵) r(20) is breaking new ground at #AES2024

Big news ! 💥We've teamed up with @BrightMindsBio to bring our real-time seizure detection tech to their phase 2 trial for drug-resistant #epilepsy. Making invisible seizures visible → right from home 📱🧠💡 #digitalhealth #EEG #clinicaltrials 🔗 hubs.la/Q03tk5xR0