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Chronic illness isn’t just a handful of bad days. It’s a constant baseline of symptoms. Pain, fatigue, immune dysfunction, it never leaves. Some days it screams. Some days it whispers. The truth is we’re always sick, we just get better at masking it on the “less bad” days.

I miss how sleep used to improve my energy, mood and even my pain. Now with chronic illness, I wake up more exhausted than when I went to bed, like my body never stopped fighting. These days, sleep doesn’t restore me at all, it just delays the struggle for a few hours.

Have you ever had a medical emergency where you weren’t believed or taken seriously by doctors? If so, what happened?

Those who track their HR with Apple Watch, or I guess any smart watch with a sensor. Someone just sent me this and said I should be wearing my watch on the inside of my foreman for a better reading. Does anyone do this? I’m experimenting, seems the same reading both ways.

Everything is calculated when you’re chronically ill. What can I do today without making tomorrow worse? Is this task worth the crash? Most people don’t have to choose between a certain activity and a functioning body. We do unfortunately.

The hardest part of chronic illness isn’t always the symptoms. It’s the misunderstandings. The judgement. The gaslighting. The isolation. The abandonment from loved ones. The illness itself is hard. The way people respond to it can really break you.

🤦 It’s wild to me how some people read a general post about chronic illness and immediately jump in to say I’m wrong and that only applies to their illness. Energy limits and crashes aren’t exclusive to one illness. Stop acting like chronic illness is a competition.

It’s easy to believe in cures when you’ve never needed one. To believe if you ever get sick you’ll be fixed quick. To think that doctors will always have the answers. Chronic illness changes that. You learn quickly that medicine isn’t always magic. That doctors don’t know

People think you get used to being chronically ill. Truth is, you don’t. Every flare still knocks you down. Every new symptom still scares you. Every day you feel your body betraying you more and more. You may smile more or hide it better. But life never feels normal.

Please don’t ask what someone with chronic illness did to make them so tired. We use 100% of our energy to do what healthy people can do with 30%. Getting dressed, cooking, showering, that can be our whole day. Our bodies are working overtime just to perform basic tasks.

Once you become sick you realize how much you took for granted when it comes to your body and how it functioned Standing, breathing, eating, sleeping. A body in balance is incredible for all that it has to accomplish. I miss the simplicity of a body that functioned properly.