Why do I feel ⁦Saturday Night Live - SNL⁩ is specifically making fun of me?? (and ⁦Anna McCollister⁩ )? #T1D #dietcokeaddiction youtu.be/T6EVgwMfzb0?si…

This is disturbing but I’m glad researchers are identifying and publishing about the risk, so that we can develop ways to flag or fix the issue. The benefits of generative AI are mind boggling, but they will only be realized if we find and fix the very real problems #AI #ChatGPT

It’s a true honor, to join the board of The Sequoia Project ! Sequoia is leading the way in making health data exchangeable and interoperable, critical steps to making sure that health data works for patients when, where and how we need it! #healthdata #patients #interoperability

Fascinating graph by @joshcmandel -all of the individuals who have interacted w/ his #healthdata in the past 6 yrs. Everyone should be able to see this info w/out needing to be a CS #EHI expert! One of our #HITAC recs to @ONC_HealthIT for #HTI1 This proves it’s possible! #HTI2

Please join us in welcoming Susannah Fox and Dr. Helen Burstin, at 3 p.m. this Sunday, February 18th Politics and Prose. Learn more about the health rebel alliance that is building up our collective capacity for better health. Link for details 👉🏻 bit.ly/3uwSl4H

I missed out on #SCOPESummit, so no way I was missing out on #RebelHealth👇👇👇#PatientLed FTW 🙌 H/T Susannah Fox 👏 I have a long flight coming up & this is coming along ✈️ Think Spring 🌷 and #patients! 🫶

It was standing room only today to see Susannah Fox interviewed by Helen Burstin, MD (@helenburstinmd on IG & 🧵) at the book launch event for Rebel Health! Our #WeAreNotWaiting movement & #LongCovid are among many stories she tells of #patient communities hacking & creating the solutions we need! #diabetes #T1D

This is absurd… come on NIH … this one is fixable.

Anna McCollister NIH Broader than NIH, though. Re funders role: Many patient driven research done unfunded. Publishing may lead to funding but often unfunded work therefore no grant org to push to cover this. Some grant orgs will cover when asked; but again not always a grant org involved. 1/

I’m really looking forward to speaking at today’s ⁦Verisma⁩ #VerismaAcademy about the critical need for patients to access their data and for institutions to protect patient privacy! #patients #healthdata #privacy #HIT

Love this!!! Kudus to the women driving this effort in #ME/CFS and #longcovid and to ⁦Susannah Fox⁩ for highlighting their work! How patient-led research could speed up medical innovation sciencenews.org/article/patien…

Excited to explore #AI #health #governance next week Alliance for Health Policy 2024 Signature Summit "AI in Health - Navigating New Frontiers". I'll be moderating a panel titled responsible AI featuring an impressive lineup of experts, regulators & #patients. Hope to see you there!

Really ⁦Eli Lilly and Company⁩ & ⁦Novo Nordisk⁩ ? This is absurd!! Your cos were built on #insulin & your rhetoric claims you’re committed to patients.You know the consequences of shortages & forcing #patients to use vial & syringe-Do better! statnews.com/2024/07/17/ins…

We're VERY excited to help lead HHS.gov technology, #AI, and data strategies to use every lever possible to improve the lives of all Americans! ONC is now the Office of the Assistant Secretary for Technology Policy and ONC (ASTP/ONC) hhs.gov/about/news/202…

I really wish NBC Sports NBC Olympics & Paralympics would have had Snoop Dogg and Martha Stewart to be the opening ceremony commentators! Please let them do the closing ceremony!!

Wow! I'm REALLY looking forward to reading this upcoming book by Gardiner Harris As a #patient w/ complex chronic disease, we need #pharma cos making products that keep us alive AND #watchdogs willing to keep them honest, ethical & hold them accountable. This will be a #goodread