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Did you know we have a regular newsletter for anyone interested in RDRN? ➡️ Keep up to date on RDRN’s progress ➡️ Be the first to hear about launch news ➡️ Discover how you can be involved Subscribe here: camraredisease.us13.list-manage.com/subscribe/post…

Hear from some of our working group members who helped us behind the scenes at RDRN as they share their personal reasons for joining our mission to make a difference. 💪🧬 Here's to the amazing work we've done so far and all that's yet to come! #RareDiseaseResearch #OurWhy

Did you know that anyone can join RDRN? Anyone with an interest in rare disease research is welcome, from those living with a rare disease to funders! We believe in giving everyone a voice to suggest their research ideas, and create cross-sector partnerships.

Are you in the rare disease community? J Join RDRN to be part of a vibrant online community that empowers individuals with lived experience of rare diseases to drive research and innovation by accessing valuable resources, mentorship, and matchmaking tools. #RareDiseaseResearch

Did you know that RDRN is free? We want RDRN to be accessible to all and so there is no sign-up fees or charges to access the platform's resources and mentoring. #RareDisease #RareDiseaseResearch #RDRN #RareDiseaseCommunity

Did you know you can keep up to date with us at RDRN? ➡️ Keep up to date on RDRN’s progress ➡️ Be the first to hear about launch news ➡️ Discover how you can be involved Scan the QR code to keep connected, upskilled, and to be ready to collaborate!

Want to stand out in the rare disease space and create truly impactful research? Join RDRN to collaborate directly with rare disease communities, gaining insights into their innovative research ideas and healthcare needs.

Did you know that RDRN welcomes members from across the globe? Keep up to date with us by signing up to our newsletter here: camraredisease.us13.list-manage.com/subscribe/post… #RareDisease #RareDiseaseResearch #RareDiseaseCommunity

Rare disease research currently comes with many challenges for everyone within the community. RDRN aims to support and unite everyone within the rare disease community to improve rare disease research. Keep up to date with RDRN here: https://camraredisease.us13.list-

In just one week, we will finally be launching at RAREfest24! Join us as we finally share what we've been working so hard on—be there for the launch and experience various activities we have in store on the day. #RareDisease #RareDiseaseResearch #RareDiseaseCommunity

Only five days to go until the launch of the RDRN website! Prepare to explore a groundbreaking platform that’s transforming rare disease research. Be sure to visit us at #RAREfest24 and take part in our interactive experience—the Great Rare Disease Research Adventure!

The wait is over—the new RDRN website is LIVE! Join now for free and become part of the revolutionary rare disease research platform for everyone. #RareDisease #RareDiseaseResearch #RareDiseaseCommunity #RDRN

We already have a whopping number of RDRN sign ups and we can not thank you all enough for showing your support for our project that launched last week! Join us now by heading over to our website: rd-rn.org #RareDisease #RareDiseaseResearch #RareDiseaseCommunity

RDRN officially launched on the 22nd November! If you haven’t seen our new website yet, make sure you check it out here: rd-rn.org

RDRN welcomes anyone interested in or impacted by rare disease. We want to turn rare disease research on its head! Join us now: rd-rn.org

Are you following us yet? You can find RDRN on Facebook, LinkedIn, X, and Instagram to keep updated with all the latest news. Follow us now: rdrn.carrd.co

At RDRN, you can find ongoing studies and research, patient-centred research, rare disease resources, websites and organisations, conferences, training, upcoming events, and PPI opportunities. Find out more here: rd-rn.org/resources/

How does RDRN work? 1. Sign up and begin your journey! 2. Showcase your research concept 3. Network and matchmaking 4. Access resources and support 5. Share your experience For more information, click here: rd-rn.org/how-it-works/ #RareDisease #RareDiseaseResearch

Have you read our latest blog post, 'Patients to Pioneers'? Learn about the story behind the #RareDisease research revolution, the vision behind the network, and how our community helped build RDRN from an idea to reality. Read it here: rd-rn.org/patients-to-pi…

There are many benefits to joining RDRN, where members from all stakeholder groups join for various reasons. Find out more about RDRN here: rd-rn.org #RareDisease #RareDiseaseResearchNetwork