The story of Zach Sobiech, a teenager with osteosarcoma, is the basis for an upcoming movie from Disney+, "Clouds". youtu.be/OWEgUhWU4g4

Today is #WorldCancerResearchDay & we want to accelerate research. We are working hard on requesting med records & samples to generate & release data. Curious what that data might look like? Check out the data our sister project has released at MBCproject.org/data-release

Though osteosarcoma tends to affect people ages 10-30, the OSproject.org is open to anyone ever diagnosed with osteosarcoma. The age at diagnosis for our current participants ranges from under 10 years old to over 50 years old. #ChildhoodCancerAwarenessMonth

The Osteosarcoma Project The The Osteosarcoma Project needs more participants, especially adults. There are more adults diagnosed each year than children with this type of #sarcoma but much less research. If you’ve ever had #osteosarcoma please visit OSproject.org for more information.

The graph below is an illustration of individual patient power. Power that is especially needed for #rarecancer research. #RareCancerDay (1/5)

Burt, the parent of a patient with osteosarcoma, has invaluable information to provide about his family's experience. Together, the entire osteosarcoma community has the power to move research forward. osproject.org #ChildhoodCancerAwarnessMonth

Treatments for osteosarcoma haven't changed in 30-40 years. Maeve was frustrated by the old treatments she received for her osteosarcoma. The OSproject wants to accelerate research and the development of new therapies. #RareCancerDay #ChildhoodCancerAwarness

.TargetCancer Fdn has long been a tireless advocate for #rarecancer research, most recently evidenced by their launch of TCF-001 TRACK. We are grateful for their deep partnership in our work and look forward to seeing the continued success of their projects.

Agents: Fri 16Oct is a BIG day: “Clouds” premieres on Disney+, the story of OsteoWarrior, Zach Sobiech - the kid that fought #Osteosarcoma with all his heart and soul - for his life, for his family and for his beloved. It is our collective OS story. bit.ly/MIBclouds

Medical records have stories to tell - through 100s of pages, we learn about a person & their experiences. During this time, we continue to receive & generate data from these records. Join the osproject.org to share your story & help speed treatment discoveries.

Meet Rafael, Clinical Data Specialist for Count Me In. What questions do you have for Rafael about his hours spent reading thousands of pages of medical records?

Tania and Imani are working to de-identify and prepare tissue samples for genomic sequencing. Here's what a de-identified sample looks like when it's ready to go. Find out more at [osproject.org]

Patient-partnered research has the ability to empower and affect treatment change for patients with osteosarcoma, like Phoebe. Together we can drive research to discover better treatments for patients with osteosarcoma. #JoinCountMeIn

Many cancer patients are treated in community settings where research might not be performed. OSproject aims to empower patients anywhere in the US & Canada to participate in research and accelerate treatment discoveries. Find out more at OSproject.org #JoinCountMeIn

A new $16 million National Cancer Institute grant will support two Count Me In patient partnered research projects in rare cancers: ms.spr.ly/6018pfhLm

We’re excited to share that as of today, #CountMeIn is now available to all patients with cancer in the US & Canada. Learn more at joincountmein.org. By participating in the OSproject, you are already a part of Count Me In and your participation will not be affected.

By joining the OSproject, every patient who has ever been diagnosed with osteosarcoma in the US & CA can share their information and voice with researchers. Learn more about how you can help transform research at osproject.org

A reminder to please follow us at Count Me In to stay up to date with us. Thank you!