Impressive progress of little Jules: nosymedia.info/telethon-the-i… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Today is a great day for medical science, and the future. Congratulations and thank you to the NHS workers, trial volunteers and scientists who have made this a reality. The pandemic is not over and relaxing too early would be dangerous. But this is a significant moment.

Have you see the easyfundraising advent calendar? Visit easyfundraising.org.uk/advent-calenda… throughout December for the chance to raise donations for @myotubulartrust and prizes for you. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Christmas shopping? Shop at easyfundraising.org.uk/causes/themyot… this week to raise double donations for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Myotubular Trust announce 16th research grant: mailchi.mp/85bb93ad2f64/y… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Christmas shopping this weekend? Don't forget purchases made at easyfundraising.org.uk/causes/themyot… raise funds for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Have you seen the easyfundraising advent calendar? Visit easyfundraising.org.uk/advent-calenda… for the chance to raise donations for @myotubulartrust and prizes for you. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Sick baby's return to New Zealand still to take flight stuff.co.nz/manawatu-stand… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Love this. ♥ Don't be lonely this Christmas ... join in. #Christmas #JoinIn

Last minute Christmas shopping? Don't forget purchases made at easyfundraising.org.uk/causes/themyot… raise funds for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Merry 'different' Christmas everyone. Thank you for being part of our community over the past 12 months and supporting our work with follows, likes, shares and comments. Wishing you all a safe, happy, healthy and peaceful holiday season ... here's to an improved 2021. 🎄 🎅 🌟

Starting to worry about being alone/lonely on Christmas Day? Take a look at bacp.co.uk/news/news-from…. 2020 is the 10th year of the social media campaign which uses the hashtag #JoinIn on Twitter to connect all of those who could do with some company.

Audentes Therapeutics Announces FDA Lifts Hold on ASPIRO Clinical Trial of AT132 for Treatment of X-Linked Myotubular Myopathy (XLMTM): businesswire.com/news/home/2020… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

BRIEF—FDA lifts clinical hold on Astellas AT132 trial: thepharmaletter.com/in-brief/brief… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #clinicaltrial #clinicaltrials

FDA Lifts Clinical Hold On Trial Of AT132 For Treatment Of X-Linked Myotubular Myopathy: nasdaq.com/articles/auden… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #clinicaltrial #clinicaltrials

Tipp father’s joy as he raises funds needed for son’s emergency flight: extra.ie/2020/12/28/mus… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Sunflowers grown in Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower

Need some sunshine in your life this dreary December morning? Take a look at the sunflowers from ten years of #TheBigSunflowerProject at instagram.com/thebigsunflowe…. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower

Sunflower grown in Melbourne, Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower