#smaawarenessmonth2020 #TreatSMA We will release one poster a day with a video or a live webinar. Pls make sure you share. Awareness is key to educating people about what SMA is which will open minds, bring about change and equality along with support in getting treatment.

€145,000 more and we are over the line for Livie!! Let's do this for her birthday in 3 weeks time... let's get 2 million candles on that 1st birthday cake!! #teamlivie #abetterlifeforlivie #2millioncandles

Wereldwijd wordt door veel kindjes gestreden voor de behandeling met #ZolGenSMA, vandaag willen we er een paar voorstellen. We hopen natuurlijk dat deze behandeling in de toekomst voor alle patiëntjes beschikbaar komt!🙏 A Better Life for Livie Ame Emilly LifeforLucy #smaawarenessmonth2020

We are 15 days from Livie's 1st Birthday and just €127,000 away from her treatment... 🌸PLEASE HELP us 'wrap this up' for Livie's Birthday🌸 What can you do? Share, Invite, Donate... tell everyone you meet 💕 #wrapitupforlivie #teamlivie gf.me/u/yjm33w

Happy Friday everyone... Hope you all have a wonderful weekend planned. Here's a photo of Livie before all this craziness started 🥰 Here's hoping we can get over 900k before the weekend is out! It's getting so close 💕 #teamlivie #abetterlifeforlivie #letskeepgoing

Now just 12 days to go and were down to €105,000 left to raise... AMAZING!! Let's do this!! #teamlivie #abetterlifeforlivie

Almost €900,000 everyone!!! gofundme.com/f/a-better-lif…

🌸🍰🎁Birthday Countdown🎁🍰🌸 It's 8 days until we put 2,000,000 candles on Livie's First Birthday Cake... We have €84,000 to go and we KNOW we can do it!!💟 gf.me/u/yjm33w #2millioncandles #TeamLivie #abetterlifeforlivie #birthdaywishforlivie

Amazing stuff 🇮🇪DonegalTownBasketballClub thank you all so much 💕⛹️‍♂️⛹️‍♀️ #teamlivie

After a week of Eoghan McDermott harassing Cian to shout 'Halellujah' down the phone, @RozannaPurcell finally made it happen 😅 here's a clip from Breakfast on RTÉ 2FM this morning. Delighted to donate to A Better Life for Livie ! Help them reach their goal here: gf.me/u/yjm6vz

Family say they have pleaded with the HSE to allow Livie to be treated in Ireland #TeamLivie #abetterlifeforLivie donegallive.ie/news/news/5686…

🌸A little update on Livie and the battle behind the scenes as we close in on our fundraising target🌸 JOE DUFFY Ireland AM Claire Byrne Live HSE Ireland

Thank you for sharing!! 💕 #teamlivie #abetterlifeforlivie

We need just €23,000 now... It's so exciting...let's do this!! Please retweet, it's her 1st Birthday tomorrow!! 💕🎂🎁 #teamlivie #HappyBirthday #treatlivieathome

Let's get this done... and when we do let's all come together and get Livie her treatment here at home, in Ireland. No vulnerable baby should be forced to travel, never mind to the US in a pandemic 🎂🎁 #treatlivieathome #teamlivie #abetterlifeforlivie

🎉🎊WHAT A DAY!!! 🎊🎉 #wedidit #2millioncandles #dreamofrainbows

🎉Happy Birthday Beautiful Livie🎉 One her 1st Birthday, we managed to hit our fundraising target. We can now get Livie her treatment in the USA. A lot to organise but we made it everyone. #teamlivie #wedidit #smatype1 #ZolGenSMA