TOPICAL REVIEW: Role of NOTCH3 Mutations in the Cerebral Small Vessel Disease Cerebral Autosomal Dominant Arteriopathy With Subcortical Infarcts and Leukoencephalopathy #stroke ow.ly/Dduq30lObwY

Sharing my husband's story to raise CADASIL awareness. It started with strokes and ended with mixed dementia for Tom. If the collection of symptoms sound familiar in your family, please ask your neurologist to test for CADASIL. Thank you. nshoremag.com/.../fighting-f…

Exciting breakthrough in vascular dementia research! 🧠 Our latest pre-print identifies unique blood proteomic signatures in CADASIL, the most prevalent monogenic form of vascular cognitive impairment and dementia (VCID). biorxiv.org/content/10.110…

Heart Health Can't Wait: A Simple Screening Can Be Worth A Lifetime. Get Screened For Stroke & Heart Disease Risk.

Hi! I hope everyone who can, WILL join the cureCADASIL webinar on Thursday evening to watch Dr Fanny Elahi. Let's show our respect and support for this truly amazing person & her dedicated team!!!! register.gotowebinar.com/register/47639…? #cureCADASIL #thinkCADASIL #raredisease #CADASIL

What if we could map every connection in the brain? #CZBiohubSF investigators are using optogenetics + holography to uncover the ways our 89 billion neurons interact bit.ly/493i5DO

Lecanemab is the only disease-modifying drug currently approved by the FDA for #Alzheimers disease. Dr. Alejandra Sanchez Lopez UCLA Easton Center for Alzheimer's Research & Care explains how #Lecanemab removes toxic proteins from the brain and slows cognitive decline in early stages of AD. youtu.be/BFE8nOyKwhQ?si…

Caring for someone with a progressive neurologic disease can be financially challenging. These expert tips can protect you and your loved ones: bit.ly/3b2zt3p #Caregiving #Caregiver

Hi All! Dr Fanny Elahi's webinar is now available. Just Fantastic! Follow the link: conta.cc/3Qh23jk #cureCADASIL #cadasilawreness #letsworktogethertowardsacure #cadasilwarrior #CADASIL #diseaseofthepast #cadasilresearch #thinkcadasil

Hi All! This CADASIL Consortium webinar is open to the public! Unraveling Sleep in Aging presented by Dr. Christine Walsh & Dr. Liza Ashbrook. Registration link: ucsf.zoom.us/.../register/W…

Another great answer to our question: "How do you think doctors can better hear and validate the #RareDisease patient experience?"

DEMENTIA is not something to be ashamed of, but IGNORANCE and STIGMA are. Let's raise awareness, promote understanding, and support those affected. #EndTheStigma #DementiaAwareness

Mitochondria serve as energy supplies near neuronal synapses. Using their novel spine + mitochondrial ATP reporters, Vidhya Rangaraju, PhD & team are measuring synaptic mitochondrial function in vivo & in human iPSCs to understand mitochondrial phenotypes in ALS #ALSAwarenessMonth

Accepting #aging doesn’t mean giving up or giving in, and embracing getting older leads to other strengths, according to a #PalliativeCare specialist: bit.ly/3FYmsVj #SeniorLiving

Carrie Pasquarello talks with Dr Fanny Elahi about CADASIL. CADASIL Unveiled: The Hidden Link to strokes and migraines. Share with friends and family. Thank you! youtube.com/watch?v=h02sdJ…

Exciting news for the Parkinson's community! Researchers funded by NIH are developing a new type of brain pacemaker. This "self-adjusting" device could offer continuous and personalized treatment for Parkinson's symptoms. Read the full story now: go.nih.gov/sWAN8VV

In the most recent Savvy Safety Sisters PARTNERS IN PREVENTION podcast, Carrie Pasquarello had the privilege of interviewing Angelique, a 25-year-old Project Coordinator from Pretoria, South Africa. Angelique shared her journey of living with CADASIL youtu.be/xyibNA3rtzA?si…

World CADASIL Awareness Day ~November 16th~ CBS Albany New York, 6 WRGB, segment on Michael Kennedy. He and his family work tirelessly to raise CADASIL awareness and funds for research. CADASIL is a rare blood disorder that primarily affects the brain. 📷cbs6albany.com/news/local/loc…