TAPS Support
@tapssupport
Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd
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http://www.tapssupport.com 26-12-2018 20:57:50
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We have resources and information on our website created to break down the jargon and myths about TAPS. Discover more here: bit.ly/3mG2OCy #tapssupport #tapsisreal
NEW RESEARCH: '... sFGR in identical twins is associated with a reduction in static and dynamic lung volume and a reduction in lung diffusion, even when taking the reduced lung volume into account.' More: bit.ly/3xAgZCD
#sfgr #monochorionictwins #lungfunction
14% of TAPS cases present with nothing more than discordant MCA doppler readings. These need to be done every 2 weeks, and recorded to check for TAPS developing. #tapssuport #tapsisreal bit.ly/3ajFJkb
Risk factors for adverse outcome in MC twins include prematurity, severe cerebral injury & the type of MC pregnancy complication. We recommend cerebral ultrasound examinations in all complicated MC twins at birth... bit.ly/3jvJ3Na #tapssupport #tapsisreal #identicaltwins
What do you wish you had have known before you got a TAPS diagnosis?
Join the conversation here: bit.ly/3dqdeTR #tapstalkstuesdays #tapssupport #tapsisreal
A rare complication of monochorionic twins is called TRAP sequence. Twin Reversed Arterial Perfusion (TRAP) Sequence happens in less than 1% of these pregnancies. Learn more: bit.ly/3qQPnlN #tapssupport #tapsisreal #trapsequence
Dr. Lopriore also wrote the first paper describing spontaneous TAPS way back in 2006, so for the TAPS Support Team, this is a special interview.... bit.ly/31B39jI #tapssupport #tapsisreal
Each year, our list of names grows longer, but very few changes are made to guidelines and supporting screening. We’re asking for your help - Can you help us with a donation? Click here to donate: bit.ly/3wLjjlh. Thank you
#tapstwins #tapssupport #charity #mission
Join us in remembering the babies lost to TAPS from our community, and sending love to families who have experienced twin loss.
Link to video: bit.ly/43T9JO7
#tapssupport #twinloss #tapstwins #twinlesstwins
Brought to you by our friends at EFCNI , this important webinar highlighted many issues around loss in multiple pregnancy. especially the emotional impact as part of the ESCNH.
Recording here: bit.ly/3VJeKqB
#cotwinloss #babyloss #efcni #escnh #tapssupport
ICOMBO imakes this document available via their website here: icombo.org/bereavement-re…
Their Statement of Needs also highlights the importance of support and ongoing care for these familieshere: bit.ly/3xoI9fA
#twinloss #tapstwins #lossinmultiplebirth #icombo
Thomas, a research fellow at St. George's Hospital in London is raising funds today as he runs the Paris Marathon. Donate to his mission here: bit.ly/3U5mnXa
Learn more: bit.ly/3U57iF0
Asma Khalil #twinresearch #tapssupport #twins #twinpregnancy
The Neonatal Butterfly Project offers information and resources, including a self study course. For more information, resources and contact details, visit the website here: bit.ly/2PRiYNa
#twinloss #neonatalbutterfly #purplebutterfly #tapssupport Nick Embleton 🦋🤱🎓🌎🌈🩺🔬🧪
Families who have experienced twin loss often feel alone, and that their unique needs are not heard. Footprints Baby Loss offers peer support to these families. More: bit.ly/49q7GST
#footprintsbabyloss #twinloss #tapssupport #community Footprints Baby Loss - Twin and Triplet Support
TAPS is often discovered too late, and even in cases where intervention is performed, the outcoome is not always perfect. We support the purple butterfly - more: bit.ly/3g2Aj0q
#skyehigh #twinloss #tapssupport #purplebutterfly #tapstwins TheSkyeHighFoundation
Published in the Lancet, this article entitled by Berger et al ( bit.ly/3Ua1GcJ ) describes a painting in Muiderslot. On April 7th, we remember these twins
#tapssupport #tapstwins #wikkelkinderen #muiderslot #rijksmuseum
Muiderslot Rijksmuseum Fetal Therapy LUMC, Leiden
April 7th is dedicated to the memory of the babies we have lost to TAPS. Over the course of the day, we will be sharing more about the reason behind this date, resources, and a memorial video. Help us keep their memories alive.
#tapssuport #tapstwins #twinloss #babyloss