TAPS Support(@tapssupport) 's Twitter Profileg
TAPS Support

@tapssupport

Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd

ID:1078032161347960833

linkhttp://www.tapssupport.com calendar_today26-12-2018 20:57:50

4,6K Tweets

1,5K Followers

1,9K Following

Asma Khalil(@ProfAsmaKhalil) 's Twitter Profile Photo

Fifty medics cram into operating theatre to save baby's life with rare procedure - apple.news/A0EDqQNEyQM6do…

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We have resources and information on our website created to break down the jargon and myths about TAPS. Discover more here: bit.ly/3mG2OCy

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NEW RESEARCH: '... sFGR in identical twins is associated with a reduction in static and dynamic lung volume and a reduction in lung diffusion, even when taking the reduced lung volume into account.' More: bit.ly/3xAgZCD

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14% of TAPS cases present with nothing more than discordant MCA doppler readings. These need to be done every 2 weeks, and recorded to check for TAPS developing. bit.ly/3ajFJkb

14% of TAPS cases present with nothing more than discordant MCA doppler readings. These need to be done every 2 weeks, and recorded to check for TAPS developing. #tapssuport #tapsisreal bit.ly/3ajFJkb
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Risk factors for adverse outcome in MC twins include prematurity, severe cerebral injury & the type of MC pregnancy complication. We recommend cerebral ultrasound examinations in all complicated MC twins at birth... bit.ly/3jvJ3Na

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A rare complication of monochorionic twins is called TRAP sequence. Twin Reversed Arterial Perfusion (TRAP) Sequence happens in less than 1% of these pregnancies. Learn more: bit.ly/3qQPnlN

A rare complication of monochorionic twins is called TRAP sequence. Twin Reversed Arterial Perfusion (TRAP) Sequence happens in less than 1% of these pregnancies. Learn more: bit.ly/3qQPnlN #tapssupport #tapsisreal #trapsequence
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Dr. Lopriore also wrote the first paper describing spontaneous TAPS way back in 2006, so for the TAPS Support Team, this is a special interview.... bit.ly/31B39jI

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Each year, our list of names grows longer, but very few changes are made to guidelines and supporting screening.  We’re asking for your help - Can you help us with a donation? Click here to donate: bit.ly/3wLjjlh. Thank you

Each year, our list of names grows longer, but very few changes are made to guidelines and supporting screening.  We’re asking for your help - Can you help us with a donation? Click here to donate: bit.ly/3wLjjlh. Thank you #tapstwins #tapssupport #charity #mission
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Asma Khalil(@ProfAsmaKhalil) 's Twitter Profile Photo

We are fundraising for research in twin pregnancies. Our aim is to raise £100,000 which is a very ambitious target but with everyone’s help I’m sure we can do it! One of my colleagues is even running a marathon!

Please consider supporting us here:

tinyurl.com/3uffzhu4

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Join us in remembering the babies lost to TAPS from our community, and sending love to families who have experienced twin loss.
Link to video: bit.ly/43T9JO7

Join us in remembering the babies lost to TAPS from our community, and sending love to families who have experienced twin loss. Link to video: bit.ly/43T9JO7 #tapssupport #twinloss #tapstwins #twinlesstwins
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Brought to you by our friends at EFCNI , this important webinar highlighted many issues around loss in multiple pregnancy. especially the emotional impact as part of the ESCNH.

Recording here: bit.ly/3VJeKqB

Brought to you by our friends at @EFCNIwecare , this important webinar highlighted many issues around loss in multiple pregnancy. especially the emotional impact as part of the ESCNH. Recording here: bit.ly/3VJeKqB #cotwinloss #babyloss #efcni #escnh #tapssupport
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ICOMBO imakes this document available via their website here: icombo.org/bereavement-re…
Their Statement of Needs also highlights the importance of support and ongoing care for these familieshere: bit.ly/3xoI9fA

ICOMBO imakes this document available via their website here: icombo.org/bereavement-re… Their Statement of Needs also highlights the importance of support and ongoing care for these familieshere: bit.ly/3xoI9fA #twinloss #tapstwins #lossinmultiplebirth #icombo
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Thomas, a research fellow at St. George's Hospital in London is raising funds today as he runs the Paris Marathon. Donate to his mission here: bit.ly/3U5mnXa
Learn more: bit.ly/3U57iF0

Asma Khalil

Thomas, a research fellow at St. George's Hospital in London is raising funds today as he runs the Paris Marathon. Donate to his mission here: bit.ly/3U5mnXa Learn more: bit.ly/3U57iF0 @ProfAsmaKhalil #twinresearch #tapssupport #twins #twinpregnancy
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The Neonatal Butterfly Project offers information and resources, including a self study course. For more information, resources and contact details, visit the website here: bit.ly/2PRiYNa

Nick Embleton 🦋🤱🎓🌎🌈🩺🔬🧪

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Families who have experienced twin loss often feel alone, and that their unique needs are not heard. Footprints Baby Loss offers peer support to these families. More: bit.ly/49q7GST
Footprints Baby Loss - Twin and Triplet Support

Families who have experienced twin loss often feel alone, and that their unique needs are not heard. Footprints Baby Loss offers peer support to these families. More: bit.ly/49q7GST #footprintsbabyloss #twinloss #tapssupport #community @footprintsbl
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TAPS is often discovered too late, and even in cases where intervention is performed, the outcoome is not always perfect. We support the purple butterfly - more: bit.ly/3g2Aj0q

TheSkyeHighFoundation

TAPS is often discovered too late, and even in cases where intervention is performed, the outcoome is not always perfect. We support the purple butterfly - more: bit.ly/3g2Aj0q #skyehigh #twinloss #tapssupport #purplebutterfly #tapstwins @TheSkyeHighFdn
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April 7th is dedicated to the memory of the babies we have lost to TAPS. Over the course of the day, we will be sharing more about the reason behind this date, resources, and a memorial video. Help us keep their memories alive.

April 7th is dedicated to the memory of the babies we have lost to TAPS. Over the course of the day, we will be sharing more about the reason behind this date, resources, and a memorial video. Help us keep their memories alive. #tapssuport #tapstwins #twinloss #babyloss
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