Struggling to navigate health insurance with VHL? The VHL Alliance website has resources that can help. Learn more here: buff.ly/4dlcA6W #VHLAwareness

The VHL Alliance shared this video. Learn more during #VHLAwareness month.

Struggling to understand VHL? This video can help! Click here to learn more: buff.ly/3wKZe3d #vhlawareness

Can VHL cause cancer? 💭 VHL causes cysts and tumors that can have adverse effects on various organs. These growths can be cancerous or benign. #VHLAwareness

Is it possible to test for VHL? The short answer: YES VHL is diagnosed via genetic testing. VHL progresses over the patient’s lifetime, making early diagnosis and disease management critically important. #VHLAwareness

The FDA's approval of Welireg in 2021 was a huge step forward in VHL treatment. We're continuing to work towards improving access to Welireg worldwide 🌎 Learn more about Welireg here: buff.ly/3Uv8EaZ #VHLAwareness #VHLtreatment

VHL is a rare disease that affects 1 in 36,000 births. While the average age of VHL onset is 26 years old, manifestations of the disease can appear in individuals as young as 1 year old. #VHLAwareness #VHLAwarenessMonth

Have you shared your VHL story? VHL Awareness Month is the perfect time to speak about your experience with VHL and raise awareness for our cause! 🔗 Click here to download the Instagram Story template: buff.ly/4dvxvUQ #VHLAwareness

Follow the VHL Alliance to learn more about #VHL during the awareness month. #VHLAwareness

hi friends!me & my lil brain tumor would very much appreciate if you could look into this cause & make yourselves aware of the importance of VHL research, & the many ways it'll positively impact treatments & understanding of many types of cancer. knowledge is power! #VHLAwareness

So... What is VHL? 🤔 VHL disease is a rare genetic condition that can cause recurrent cyst and tumor growth over the course of a lifetime. Stay tuned for more shareable VHL content throughout VHL Awareness Month! #VHLAWalk #VHLAwareness

Is anyone else already excited for the next VHL Alliance Young Adult Retreat? See you in February 2025! #vhlawareness #vhlcommunity

Feb 4th is World Cancer Day! World Cancer Day is a global initiative led by the Union for International Cancer Control (UICC) to raise awareness of cancer and encourage its prevention, protection, and treatment. #vhlawareness #vhlresearch #worldcancerday

Hear from Rachel Klein about the powerful potential of VHL research! #vhlawareness

Happy Holidays from the VHL Alliance! #vhlawareness

Yes I am aware of this as my condition gross tumours on my body and it isn’t easy living with a serious health condition that no one really knows about. #VhLAwareness